Racing for Rare Diseases South Africa

Racing for Rare – Supporting Smith Magenis Syndrome 

**Introduction:**
Join us as our inflatable boat racing team embarks on a mission to raise awareness and funds for Smith-Magenis Syndrome (SMS). Inspired by our family's journey with SMS, after our son’s diagnosis, we’re driven to make a meaningful impact for those living with this rare disorder.

**About Smith-Magenis Syndrome:**
Smith-Magenis Syndrome is a complex condition affecting 1 in 25,000 children. It brings a variety of challenges, including developmental delays, sleep disturbances, and behavioral issues. In South Africa, the resources and research are limited, making support for affected families critical.

**Our Mission:**
Our team is dedicated to raising both awareness and funds to support families and research for SMS. Partnering with Rare Diseases South Africa, we aim to channel resources into two main areas:
- **Research:** Funding innovative studies to understand and treat SMS better.
- **Family Support:** Pro...