Aaron and Eden Medical Relief Fund

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We had always dreamt of having a second child and giving Aaron the opportunity to have a sibling. Of course we naturally had concerns that a second child would have a similar condition to Aaron although his exact diagnosis is still unknown. We know that he has a Primary Immunodeficiency but the subtype or variant seems not to have been documented yet worldwide. After extensive genetic testing the conclusion was that Aaron's condition was most likely a random phenomenon that didn't have a genetic cause. Of course this could never be 100% guaranteed but we were very confident based on all our genetic testing that Eden would be a healthy baby.

Never in our darkest nightmares did we imagine that Eden would be even more sick than Aaron ever was as a baby. Within a couple of weeks it became clear that Eden had significant difficulty tolerating feeds and displayed extreme pain and severe vomiting after feeding. Aaron had alw...