Baby Nicholas Koen Medical Expenses

Started 12 days ago

Open end-date

R 48 044
0%
of R 400 000 goal
R 0
Offline donations
34
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STORY

About This Campaign

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JeNine Koen Koen
Organiser
1 
BaB campaign
Location
Klerksdorp
South Africa
Location
Started 12 days ago
Open end-date

Throughout the pregnancy, baby Nicholas' parents were continuously reassured that he was developing well and that there were no concerns regarding his growth or health.

On 18 May 2026, Nicholas was born via elective cesarean section. He experienced respiratory distress (difficulty breathing) and was rushed to the NICU immediately.

Doctors diagnosed Nicholas with a tracheoesophageal fistula, a rare congenital condition in which an abnormal connection forms between the windpipe (trachea) and the food pipe (esophagus). This caused swallowed fluids to enter his lungs and air to pass into his stomach instead of following the normal pathways. This diagnoses resulted in him having to be transferred to Sunninghill Hospital for surgery - approximately a 2½-hour drive from his family home.

Nicholas underwent surgery to repair the fistula and thereafter a separate surgery on his larynx to open his airways as he still couldn't breathe and had to be ventilated. 

In addition to the TracheoEsophageal fistula and breathing issues, Nicholas has several other major birt...

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Campaign Updates

J. Koen 16 Sep '26
Nicholas will be transported to our home town via ambulance in the next couple of days

J. Koen 16 Sep '26
Nicholas' feeding tube/peg is healing nicely He still struggles with breathing/secretions throughout the day and needs to be machine suctioned frequently, but has not yet needed to be put back on ox...

J. Koen 10 Sep '26
The peg surgery went well. We pray that the surgical site heals nicely so that he and mommy can go home soon. It's been hard on the family with daddy having to care for Nicholas' sister Dani (6) al...

J. Koen 7 Sep '26
Nicholas is scheduled for surgery on Wednesday, 9 September, for insertion of a feeding peg.
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