Baby Nicholas Koen Medical Expenses

Started 2 months ago

Open end-date

R 85 021
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of R 400 000 goal
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73
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STORY

About This Campaign

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JeNine Koen Koen
Organiser
1 
BaB campaign
Location
Klerksdorp
South Africa
Location
Started 2 months ago
Open end-date

Throughout the pregnancy, baby Nicholas' parents were continuously reassured that he was developing well and that there were no concerns regarding his growth or health.

On 18 May 2026, Nicholas was born via elective cesarean section. He experienced respiratory distress (difficulty breathing) and was rushed to the NICU immediately.

Doctors diagnosed Nicholas with a tracheoesophageal fistula, a rare congenital condition in which an abnormal connection forms between the windpipe (trachea) and the food pipe (esophagus). This caused swallowed fluids to enter his lungs and air to pass into his stomach instead of following the normal pathways. This diagnoses resulted in him having to be transferred to Sunninghill Hospital for surgery - approximately a 2½-hour drive from his family home.

Nicholas underwent surgery to repair the fistula and thereafter a separate surgery on his larynx to open his airways as he still couldn't breathe and had to be ventilated. 

In addition to the TracheoEsophageal fistula and breathing issues, Nicholas has several other major birt...

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Campaign Updates

J. Koen • 8 Nov '26
Hi all Nicholas had three episodes in less than a week, where he stopped breathing, went completely limp, turned blue and then white... These episodes are nothing short of terrifying 😓 Please, we...

J. Koen • 31 Oct '26
Hi all So, the first two weeks at home have had its ups and downs - Our little family is still learning to adjust to caring for Nicholas' needs. For the most part, he's been stable on his oxygen, b...

J. Koen • 20 Oct '26
Hi all The medical aid has finally drawn the line - They basically said that Nicholas can't stay in the ICU forever, and that with the right setup and machinery, the treatment he was getting in ICU...

J. Koen • 9 Oct '26
Hi all Nicholas has been relatively stable the last couple of days. Just yesterday that he had a bit of a rough day again where his oxygen levels dipped very low, but he luckily remained relatively...
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