Brody In Charge

Meet 3-year-old Little Brody, a true warrior and joyful soul, diagnosed with CHARGE Syndrome, Caudal Regression Syndrome, Tethered Cord Syndrome, Sacral Spina Bifida, Sacral Lipoma, Flaccid Neuropathic Bladder, Horseshoe Kidney, Bilateral Cryptorchidism, Kidney Failure, and uncontrolled Acute Dermatitis.

Brody has not had the easiest start to life, spending 70% of his little life in hospitals fighting recurring life-threatening bacterial infections and undergoing multiple major surgeries, including spinal surgery, having a tumour removed from his spinal cord, kidney removal, and Vesicostomy surgery.

His unbreakable spirit and constant smile inspire us all as he charges on through life with daily struggles that most of us will never understand, enduring constant severe pain and unbearable itching.

After two years of various treatments, including multiple hospitalizations, wet wraps, and steroid therapies, Brody's condition had shown no improvement as he became unresponsive to conventional methods. However, in December 2023, we finally discovered a treatment that h...