Eliora Medical Bills

Started 3 months ago

Open end-date

R 20 800
0%
of R 30 000 goal
R 0
Offline donations
25
Unique donors
STORY

About This Campaign

organiser-profile-picture
Kirsti Dixon
Organiser
1 
BaB campaign
Location
Johannesburg
South Africa
Location
Started 3 months ago
Open end-date

I gave birth on the 22nd of April 2025, and from the time she came out she has had difficulties, she was born in Netcare Parklane hospital, but was moved to Netcare Sunninghill Hospital for the specialists to take over, she had heart arrythmias and breathing difficulties which required her to be on a Central line IV drip to stabilize her heart and the run further tests to determine the reason for her difficulties. Her lungs collapsed twice and they struggled to intubate her which led to them having to perform a tracheostomy. On the 18th of June they diagnosed her with Costello Syndrome, a rare genetic disorder caused by HRAS gene mutations, resulting in multi-organ abnormalities, including developmental delays, distinctive coarse facial features, loose skin, and heart problems (often cardiomyopathy). It is a RASopathy characterized by failure to thrive in infancy, short stature, and an increased risk of tumors. They then needed to put in a PEG tube for feeding as she could not manage swallowing. In July we were getting ready to bring her back home as she was stable and fit...

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