Give Luke a Fighting Chance

Luke was born on 17th October 2006. He struggled to put on weight and was constantly hungry. At 3 years old after half his colon was removed due to an intussusception , he was diagnosed with an incurable genetic illness called Cystic Fibrosis. Another intestinal blockage when he was 6 years old, and up until now, Luke had been an 'healthy' CF patient. Now the tide has turned and Luke now has CF related TB. The actual diagnosis  is Mycobacterium Abscessus (NTM) (non tuberculosis Mycobacterium) CF causes the mucus in the lungs to be thick and sticky, so once an infection gets in, it is very difficult (sometimes impossible) to get it out. We are starting treatment on the NTM, but this will be a long journey of oral and intravenous medication. Luke's doctor (pulmologist) Dr Taban believes the best way forward is a CF drug called Trikafta. This drug will assist to reverse some of the effects of CF and allow him to finally cough mucus out. Wonderful news. However, here in South Africa, we do not have access to this drug through our medical insurance, and the cost is R400 000 per ye...