Grayson Thompson

Grayson Is Fighting More Than Cancer

Grayson was diagnosed with hepatoblastoma, a rare form of liver cancer, and has been undergoing intensive chemotherapy. Treatment has been incredibly difficult on his little body, with serious complications including severe breathing difficulties and metabolic acidosis requiring intensive care.

But cancer is only one part of Grayson’s story.

He also lives with cerebral palsy, severe feeding difficulties, scoliosis, developmental delays, trunk weakness, camptodactyly, retrognathia and micrognathia, and profound oral aversion. Because he cannot safely feed orally, all of his nutrition is delivered through a feeding tube.

For most of his life, we desperately wanted answers as to why our little boy faced so many challenges.

We Finally Have an Answer

On 17 September 2026, after years of investigations and genetic testing, Grayson was diagnosed with Bohring-Opitz Syndrome (BOS), a rare genetic condition caused by a...