Help our little fighter continue his fight

Started 6 months ago

Open end-date

R 328 887
0%
of R 1 000 000 goal
R 48 232
Offline donations
171
Unique donors
STORY

About This Campaign

organiser-empty-profile-picture
Sarah Zada
Organiser
1 
BaB campaign
Location
Johannesburg
South Africa
Location
Started 6 months ago
Open end-date

Born at just 26 weeks, the moment Tanelli was born, he has shown us what quiet strength looks like. Chai Netanel Matityahu (Mathys) has faced more challenges in his young life than most of us will ever understand. In His first 8 months of life he has survived 8 resuscitations, Septicaemia, NEC, ROP, a stroke, and an embolism and 6 months in hospitals. Living with a severe form of cerebral palsy and a rare syndrome, Tanelli faces obstacles that are constant and complex. Yet behind the medical terms and hospital stays is a little boy who deserves comfort, dignity, and every possible chance at a life filled with love and care. As his mother, my greatest wish is simple — to give him the best quality of life possible, even in the face of lifelong challenges.

He is living with a severe form of cerebral palsy, epilepsy and as of last week he has been diagnosed  with a rare syndrome as well that means he will be fully dependent on me and others for the rest of his life. He requires 24/7 monitoring and care and will be wheelchair-bound with multiple medical complications and co...

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Campaign Updates

S. Zada 16 Aug '26
It has been an incredibly tough 6 weeks. He was readmitted with metabolic acidosis and, after stabilising, the decision was made to place a PEG. Sadly, he developed a very rare complication. A hole...

S. Zada 28 Jul '26
We’re so grateful to share that Matty is making progress. He’s learning to sit, has gained almost full head control, his seizures are as controlled as possible given his brain injury, and most incred...

S. Zada 8 May '26
some beautiful news to share ,after a clear EEG this past week, he is officially seizure free! Last week he went through two anaesthetics in two days and, as always, handled everything like an absol...

S. Zada 15 Apr '26
Our little man is a true trooper 💙 Since the last update, Tanelli had COVID with bronchopneumonia and spent 3 nights in CTICU. Over Pesach he was admitted with E. coli, and again last week due...
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