isa noraiz cerebal palsy/epilepsy journey

Started 16 days ago

2 months left

R 76 050
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STORY

About This Campaign

organiser-empty-profile-picture
maleeha patel
Organiser
1 
BaB campaign
Location
lenasia
South Africa
Location
Started 16 days ago
2 months left

My name is Maleeha , and I’m a mother to my beautiful son , Isa Noraiz , who has been bravely fighting through life with cerebral palsy and epilepsy. 

From the very beginning, our journey has not been an easy one. What many people take for granted simple milestones, restful nights, moments of ease have been filled with challenges for us. But through it all, my child has shown a strength that inspires me every single day.

Living with cerebral palsy means Isa Noraiz faces difficulties with movement and development, while epilepsy brings unpredictable seizures that can happen at any time. Recently, our journey became even more difficult when Isa Noraiz was diagnosed with hypsarrhythmia and infantile spasms a severe and rare form of epilepsy that affects brain activity and development.

This diagnosis has been heartbreaking. The spasms can happen in clusters and are incredibly difficult to watch as a parent. Each episode is a reminder of how fragile things can be, and how urgently my child needs the right...

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