Still so much to live for

Hi, I am Patricia.

My only daughter, Kiara, fell pregnant when she was 19 years old. It was unexpected but also a blessing. Her daughter was born in November 2018, and two weeks after her birth, on December 3rd, after landing in the ICU, she was diagnosed with Pulmonary Arterial Hypertension, or PAH as it is also called. It is a progressive terminal illness with a limited lifespan.

Young, scared, and a new mother, she did not understand what was happening to her. From being so vibrant, happy, loving, and energetic, she was now not able to participate in sports, take long walks, dance around, or do any physical work as her condition does not allow for it. She gets out of breath very easily, and normal things like bending, sweeping, playing with her daughter have become very tiresome.

Kiara was placed on Revatio, which helps keep the arteries in the lungs open. She was doing relatively well until now when the pressure in her heart got much worse, and she now needs a second tablet called Ambrisentan. To give her a better quality of life on a daily basis, this medica...