Memorial Fundraiser

We are hosting a memorial fundraiser to honour young Silvio Batista’s memory, who had a rare condition, to assist children like Silvio who desperately need care.

Our non-profit organisation has found a heart-warming way to honour the memory of one of our bravest young patients, 15-year-old Silvio Batista, by launching an online crowdfunding Memorial Fund.

Through this initiative we aim to support other young patients and their families, continuing Silvio’s legacy of compassion and generosity. He recently passed away after receiving exceptional care at our Stepping Stone Hospice Children’s Unit for at least five weeks.

Silvio, who passed away just after Christmas last year after a brave fight against a rare disease, was known for his unwavering spirit.

Born blind and deaf, Silvio was diagnosed with CHARGE Syndrome, a rare syndrome caused by a genetic disorder that affects many areas of the body. CHARGE is an abbreviation for several of the features common in the disorder: coloboma, heart defects, choanal atresia, growth retardation, genetic abnormalities, an...