Catherine fights COL4A1
Started 3 yrs ago
Open end-date
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About This Campaign
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I am Catherine Arangies mother.
Catherine is a 3 year old little girl (one of twins). Unfortunately, Catherine was born with a very rare genetic mutation, called COL4A1. Catherine is visually impaired, has brain bleeds, cerebral palsy, very bad scoliosis, gets seizures, is quadriplegic and feeds by means of a feeding tube. Her seizures have always been a concern, as Doctors have battled with various seizure medications to try and keep her seizures under control.
She has even been on schedule 21 medications, but her seizures still remained a big concern. A few months ago, her Pediatric Neurologist started her off on a trial medication (Epidyolex - CBD medication). Since adding this to her daily chronic m...
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