Miliahs Rare Genetic Chromo Journey

Miliah is an amazing 7 year old with a big heart, she loves animals and people. She is determined and never gives up. She is my hero! The obstacles she has already overcome, what she currently faces and her future hurdles - is what makes her special, she wears a smile on her face and melts your heart as she enters the room. She cant regulate her emotions as well as you or me can but she really tries to be the best her she can!! She truly is the strongest little human i know!

A little history of Miliah:

Miliah was born August of 2018 - She spent her first few months in hospitals where they were trying to figure out what was going on. After many specialist appointment hospital visits they diagnosed her with a rare genetic chromosome disorder - 16q11.2q21 duplication. With there being less than 10 reported cases worldwide, the Drs didnt know what to expect. Throughout the past 7 years Miliah has had multiple surgeries, been diagnosed with multiple disorders and been through frequent extensive testing. Miliah needs on going OT, PT, behavioral and sp...