Help Nicky (26) with her fight to survive Gardner's Syndrome

Started 3 yrs ago

Open end-date

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STORY

About This Campaign

organiser-profile-picture
NICOLA VAN VUUREN
Organiser
1 
BaB campaign
Location
TZANEEN
South Africa
Location
Started 3 yrs ago
Open end-date

Hi everyone,

My name is Nicola and I am 28 years old. Most people either know me as the quiet family member reading a book somewhere in the shade, or if I've been fortunate enough to meet you through work you know that I have a passion for writing and an even bigger one for telling other people's stories. 

I am struggling to put to words what is happening to me, but I will try my best to sum it up. I apologize if I ramble. 

In 2019 I was diagnosed with a form of Familial Adenomatous Polyposis. Specifically Gardner's Syndrome.  This came with a lot of symptoms like osteomas, multinumary teeth, benign growths and tumors. And most importantly, hundreds if not thousands of polyps in my colon (and smaller intestine). These polyps had a 100% chance of becoming early onset colon cancer. 

Within a month of my diagnosis I had a laprascopic subtotal colectomy where they basically connected my small bowel to the last part of my colon, my rectum. 

I then went for routine checkups to ensure my my remaining polyps don't turn to cancer. ...

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Campaign Updates

N. VAN VUUREN 29 Oct '24
Hi everyone. It has been a rough couple of months after the total gastrectomy and whipple surgery on the 25th of May 2024. To explain it better without all the medical terms; they removed my whole...
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