Helping Samantha Stark

 

This is my friends story 

All funds will be for medical to at least give this beautiful lady some quality of life 

 

My name is Sam Stark. I am 26 years old. 

I was officially diagnosed with Neuromyelitis optica spectrum disorder in November 2022 after being sick for years. I have had plasmapheresis (which had to be stopped as I developed acute kidney failure - I had 4 rounds of dialysis) and I have had two infusions of rituximab. I am still suffering with the same symptoms as before the rituximab but my my CD19/ CD20 levels are supposedly "too low" for another dose, I am rapidly getting worse. I had to leave my job due to the severity of the migraines (which is just one of the many awful symptoms I suffer from on a daily basis). 

 

The muscle weakness in my arms and legs are getting worse (I have dropfoot on the right leg and wear an AFO). I am now battling to swallow, I am on medication to make my stomach contract (my nerves/muscles in my intestines and stom...