Semilobar HPE making a difference towards Lisa's future

I would like to bring to your attention the heart-wrenching battle of my daughter warrior Lisa Pretorius (nearly 4 years old)

Lisa was born with a rare and severe brain condition called Semilobar Holoprosencephaly. In addition to this she battles Scoliosis,a fused spine and epilepsy which leaves her unable to sit,stand, crawl,walk or speak. At almost 4 years old Lisa finally receives the right care and therapy and is she now learning to do tummy time and sitting exercises. Although this helps alot at hospital I do not have the necessary equipment to do all her exercises at home and once a month at hospital isn't enough to make progress. Therefore I need to buy her sleeping disability equipment for support and physiotherapy equipment for home use to exercise daily at home. 
Lisa's life is a daily fight for comfort and survival. On top of all that her diet was drastically changed to special foods for bowl movement and nutrition as well as added medical grade milk and supplements.

On January 17th 2026 we faced a terrifying emergency. Lisa suffered a massive epilep...