Fight for Zach

Our beautiful Zachary is happy, incredibly busy, and loving every moment of life. To Zach, the world is full of possibilities and endless fun. But shortly before his second birthday, in March 2021, we got the news that Zach’s life will be nothing like we expected, he was diagnosed with MPSII (Hunter Syndrome).

Hunter syndrome is a very rare, inherited genetic disorder caused by a missing or malfunctioning enzyme. In Hunter syndrome, the body doesn't have enough of the enzyme iduronate 2-sulfatase. This enzyme's job is to break down certain complex molecules, and without enough of this enzyme, the molecules build up in harmful amounts.

The buildup of massive amounts of these harmful substances eventually causes permanent, progressive damage affecting appearance, mental development, organ function and physical abilities.

Hunter syndrome occurs in 1 in 120 000 to 170 000 boys.

There's no cure for Hunter syndrome. 

Treatment involves managing symptoms and complications through weekly Enzyme Replacement Therapy. This is an extremely expensive treatmen...