Vision Bucket List for Zoe

Started 3 yrs ago

Open end-date

R 96 474
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of R 750 000 goal
R 0
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70
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STORY

About This Campaign

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Lucy Copeland
Organiser
1 
BaB campaign
Location
Started 3 yrs ago
Open end-date

Hi there, we are Craig and Lucy, parents to an adventurous, amazing, fun-loving, kind and all round awesome 12 year old named Zoe. Zoe loves hiking, drawing, reading, dragons, her family and friends, playing piano, the beach, Minecraft, musical theatre, adventuring, pizza, movies and most of all, her pets, Squeek and Hammie. 

 
In September this year we received the devastating news that Zoe has been diagnosed with a progressive eye disease called Stargardts Disease. This is a form of macular dystrophy. 
 
In a nutshell it is a disease where a genetic mutation causes her body to not process Vitamin A properly. It then builds a ‘protein’ called lipofusin which basically sticks to the macula or retina and causes those cells to die. Which affects the light receptors and  central vision becomes dark and blurry. This in turn affects so many things that we do in everyday life and so many of Zoe's passions. Zoe hopefully won’t be in complete darkness and  may keep her peripheral vision, but none...

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