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A life saving operation

A life saving operation

Personal message

During 2014 I had just turned 16. I stared experiencing headaches  it soon became permanent. I was hospitalized for meningitis. An EEG scan showed abnormal brain activity with possible epilepsy, I have been treated chronically since. An MRI of the brain came back normal. Only later when neck pains started I was sent for a neck MRI. This is where they picked up the anomaly in my spinal cord.  The final diagnosis was a Syringomyelia (Syrinx).

I needed a stent to drain the fluid.

It is highly risky procedure. To add to the rarity of my condition: syrinxes are said to be caused by “trauma, tumours or craniosurvical junction abnormality”. None of these causes apply to me.

Medication doesn’t cure it, it only alleviates the symptoms . The problem is that instead of growing longitudinally like it normally does, mine is growing laterally making it more dangerous.

My symptoms progressed: chronic headaches, permanent back & neck pains, pins & needles in my extremities permanently.  Dizziness & memory loss manifested due to side affects of the medication.

In 2017, my father lost his job and our medical cover. It took me 1 year to get my own. Due to my pre-existing condition I have a 12 month waiting period. Because I have a pre-existing condition there is no certainty of what my medical aid will cover in relation to my pre-existing condition. The operation is due to take place whne my medical aid cover kicks in, which is in June. At the moment I need to prepare for the operation if it has to take place before then as it could be triggered at any point. I currently still have 1 month to go. My current medical won't cover my procedure before the waiting period has passed due to anti-selection. 

 

Donations

  • Feb 14, 2019 - USD $ 9.97
  • "Lets get this moving again" - Tarien

  • Nov 19, 2018 - R 2 030.00
  • "We will get you there!!!" - Devin

  • Nov 19, 2018 - R 1 000.00
  • "Get it beaten." - Anon

  • Oct 21, 2018 - USD $ 73.04
  • "Goodluck" - Anonymous

  • Oct 10, 2018 - R 411.28
  • "Everything of the best, Chante!" - Boomgaard

  • Oct 09, 2018 - R 6 207.07
  • "Sterkte jong, hoop die help." - Green Family

  • Oct 08, 2018 - R 514.10
  • "Sterkte!" - Ronald

  • Oct 06, 2018 - R 1 000.00
  • "Good luck" - Eugene + Alicia

  • Sep 28, 2018 - R 205.64
  • "Sterkte julle!! Ons bid vir julle!! " - Mel

  • Sep 28, 2018 - R 257.05
  • "Baie sterkte!!" - Liezl

  • Sep 26, 2018 - USD $ 36.66
  • "Another drop" - Kevin

  • Sep 23, 2018 - R 500.00
  • "God bless you! " - Nicki

  • Sep 23, 2018 - R 205.64
  • "Good luck! I hope you reach your target!" - J

  • Sep 19, 2018 - USD $ 35.33
  • "Good luck. Hope it works out." - Safrican1001

  • Sep 19, 2018 - R 310.00
  • "Raindrops make a river. May your goal be met soon. " - Andy

  • Sep 19, 2018 - USD $ 7.07
  • "Sterkte" - Luan

  • Sep 19, 2018 - R 102.82
  • "I really hope this helps...goodluck with everything!!" - Kobus Kemp

  • Sep 19, 2018 - R 205.64
  • "Sterkte" - Johan Jooste

  • Sep 19, 2018 - USD $ 70.65
  • "Hope" - CJK5

  • Sep 19, 2018 - USD $ 17.93
  • "Lets get this one done" - Tarien

  • Sep 19, 2018 - R 102.82
  • "So sorry to hear of your struggles. I hope this little bit helps" - Luke Warren

  • Sep 19, 2018 - R 51.41
  • "I hope this helps" - chris

  • Sep 19, 2018 - USD $ 7.07
  • "Every littli bit helps" - Anon

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Statistics

Donations to date

R 16 877.20

Fundraising target

R 180 000.00
Donate

Chante's Medical Cause

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Due to my pre-existing Syrinx condition I have a 12 month waiting period on my medical aid. The operation has to happen ASAP as it could be triggered at any point. My current cover won't cover my procedure even if my life is threatened. The result of the Syrinx being triggered:  1) quadriplegia 2) death.

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