Strength Against Adversity
- By: Kerry Craukamp
- Short URL: https://www.backabuddy.co.za/abigails-journey
Abigail is a special girl who has been diagnosed with a rare genetic disease called Rett Syndrome.
Rett Syndrome is a neuro-developmental disorder affecting 1 in 10,000 females. Girls like Abigail appear to develop normally for the first 6 to 18 months of age, then severe problems with communication, language, learning, coordination, and other brain functions start emerging. Most of these angels have perfectly functioning brains in-so-far as intelligence is concerned- it's just their bodies that don’t function correctly. These social and engaging girls are cruelly trapped in dysfunctional bodies.
This scenario is a living reality for many families here in South Africa and all over the world. We have witnessed families rise to this challenge and support their daughters.
We have decided to participate in the Impi Challenge in October to raise funds and awareness for all these girls and their amazing families. We hope to continue to provide support for families in South Africa who are facing the challenges of Rett Syndrome and invite you to join us by donating to a cause that's very close to our heart.
You can read more about Rett Syndrome here.
- Oct 14, 2016 - R 308.46
- "Great cause!" - Mara
- Oct 13, 2016 - R 514.10
- "Abigail's supporters are going for gold!" - Annelize
- Oct 04, 2016 - USD $ 10.52
- "Go on God Mother Kerry. You are amazing. Hugs to Abigail and Matthew" - Rebecca Hourihan
- Sep 25, 2016 - R 5 779.51
- "Go for it!" - Hourihan Total Warrior
- Sep 12, 2016 - R 308.46
- "Please support this worthy cause." - Brett
- Sep 02, 2016 - R 200.00
- "More info the better we know" - Angel lee
- Sep 01, 2016 - R 102.82
- "Just a little something towards the precious little ones with such big fighting spirits. " - Layla
Rett Syndrome South Africa
Rett Syndrome South Africa's goal is to assist girls and families affected, to create awareness and fund research. Rett syndrome is a neuro-developmental disorder affecting 1 in 10,000 females.
Girls appear to develop normally for the first 6 to 18 months of age, then severe problems with communication, language, learning, coordination, and other brain functions start emerging. Girls go through regression losing purposeful use of their hands and acquired speech. Other symptoms may include seizures, scoliosis, sleep disturbances, gastroesophageal reflux disease, to name a few.
These social and engaging girls are cruelly trapped in dysfunctional bodies.
Exciting research is progressing well to find treatments and cure Rett Syndrome.