Amy's journey with IIH
- By: Amy Botha
- Short URL: https://www.backabuddy.co.za/amy-botha
My name is Amy Jeanet Botha,20 yrs and I stay in Kempton Park. I was diagnosed with idiopathic intracranial pressure in 2017. Idiopathic intracranial hypertension (IIH) is a condition characterized by increased intracranial pressure(pressure around the brain) without a detectable cause. ... A small percentage of people may require surgery to relieve the pressure. It started with my vision that was very blurry and I couldn't see far. I was then referred to a neuro-surgeon where I got therapeutic lumbar punctures until June 2018 when I had my first Lp shunt operation which wasn't successful. I had a lp shunt revision in July 2018 that had more complications.
I was then put on many different pain medications that were supposed to help with pain (oxycontin 40mg). Then in April 2019 I fell and dislodged my lp-shunt. I was rushed to casualties in Benoni and then had to be transferred to Eugene Marais Hospital and met DR Chula who then told me I need to get a Vp-shunt. I was then diagnosed with Sjogren's syndrome. Sjogren's syndrome is an autoimmune disease. This means that your immune system attacks parts of your own body by mistake. In Sjogren's syndrome, it attacks the glands that make tears and saliva. This causes a dry mouth and dry eyes.
I am fundraising for further medical treatments that the medical aid won't cover for example ct scans, blood tests, specialist consultations.
I am hoping to raise the funds by the 1st of January 2020.
Funds raised will be used for:
specialist visits: 10000
Having these funds will help me get the fastest and needed treatment that Dr knows how to help