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Baby Novah's SMA fund

Baby Novah's SMA fund

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Hi, my daughter was diagnosed with SMA type 1. It's a rare genetic sickness that destroys important motor neurons for movement and muscle development and its responsible for most infant fatalities. Aggeneys, Northern Cape.

There is a miracle drug in the US called Zolgensma and its costs approximately 35million rands. My baby is 7 months old and we need to raise the funds asap before irreversible damage is done so we are in a race against time to save her live. She is the cutest baby ever and has an older sister who is 7years old. Her sister just wants her to pull her hair but without this treatment, this will never happen. The life expectancy for this baby is 2 years. I know we as a country can come together to save my baby's life. 

As I am typing this letter she is sleeping in my arms. I told her that we were going to fight till the end and have a happy ending. There is still so many things i would love to show her. But this is not a hopeless case we trust in the Lord. The doctor that helped us is the best she is a pediatric neurologist in Constantia berg Mediclinic. She truly is our guardian angel on earth and helps us alot. So a heartfelt thanks goes out to dr. S Ackermann and her team and all the other doctors and support groups. Me and my wife, won't be able to do this without you guys. You won't be just saving my baby you will save my whole family. 

So the money generated will pay for the once-off treatment of Zolgensma that is a gene therapy drug and will be done in Cape Town. My dream is just to see my daughter do things normal babies do and this treatment will enable her to do so. I am praying and hoping you can help us. My contact number is 0823323918 or my wife 0764129257. I pray in the name of Jesus Christ our Lord, we can be helped

I would appreciate it if you as a community could help us save our baby through monthly donations for the next 12 months to get her the treatment she needs. All funds raised will be paid directly to the relevant institution.

Donations

  • Jan 19, 2022 - R 500.00
  • ""God is in control.. Faith&Hope"" - Chantell&Cheep

  • Jan 18, 2022 - R 2 000.00
  • "Sterkte aan julle " - Jacques Visser

  • Jan 18, 2022 - R 1 000.00
  • "You are in our prayers" - Madelein Visser

  • Jan 18, 2022 - R 200.00
  • "Dink aan julle " - Crystell

  • Jan 18, 2022 - R 100.00
  • "Sterkte" - Delores

  • Jan 18, 2022 - R 1 000.00
  • "

    "Faith, Hope, Love"

    " - Norbert R

  • Jan 18, 2022 - R 200.00
  • "

    Praying for you little munchkin

    " - Eleanore&Ayanda

  • Jan 17, 2022 - R 200.00
  • "Strongs" - 🙏🙏🙏

  • Jan 17, 2022 - R 100.00
  • "Ons bid vir julle" - Hopper Smith

  • Jan 17, 2022 - R 100.00
  • ""Elke druppel maak die emmer vol"...sterkte brudda" - Gwef

  • Jan 17, 2022 - USD $ 13.03
  • "May God protect and provide" - Jaco

  • Jan 17, 2022 - R 500.00
  • "Sterkte" - Godley

  • Jan 17, 2022 - R 500.00
  • "Strongs buddy to you and your family" - Gershwin

  • Jan 17, 2022 - R 50.00
  • "

    Every bit helps, good luck

    " - Zophanie

  • Jan 16, 2022 - R 1 000.00
  • "Lord we pray for a miracle" - Tal&Trup

  • Jan 15, 2022 - USD $ 65.04
  • "." - Anonymous

  • Jan 15, 2022 - R 200.00
  • "Ek bid vir jou novah" - Althea

  • Jan 15, 2022 - R 350.00
  • "Praying that she might get this treatment." - Yvette

  • Jan 15, 2022 - R 500.00
  • "Trust in God" - Jurgens

  • Jan 15, 2022 - R 1 000.00
  • "God is in beheer" - Anonymous

  • Jan 15, 2022 - R 300.00
  • "Strong's to you and your family Baby Novah" - Scooby

  • Jan 14, 2022 - R 299.00
  • "We pray for her and you as family. " - Jennifer

  • Jan 14, 2022 - R 100.00
  • "Keeping you in our prayers " - Max

  • Jan 14, 2022 - R 100.00
  • "Hope and believe" - Clerment

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Statistics

Donations to date

R 11 499.01

Fundraising target

R 35 000 000.00
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Baby Novah Medical Cause

Baby Novah Medical Cause Logo

Hi, my daughter was diagnosed with SMA type 1. It's a rare genetic sickness that's responsible for most infant fatalities, North village, Northern Cape.

There is a miracle drug in the US called Zolgensma and its costs 35million. My baby is 7 months old and we need to raise the funds asap before irreversible damage is done to her.

All funds raised will be paid directly to the relevant institution.