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Calin Retief CaliBali

Calin Retief CaliBali

Funds Raised:
R 14 853
Fundraising Target:
R 800 000
Donate

Personal message

Calin and her family have been fighting a battle without even knowing it, this disease from birth. In short, Calin would get sick almost every month with a virus affecting her lungs and were treated via nebulizer. Usually we got her healthy quickly, before needing antibiotics or cortisone. However, there were times when we couldn't beat the virus, and we had to use antibiotics and cortisone. June 2023 was different. We tried over and over, but after 5 viruses, 11 days in ICU on high-pressure oxygen, and 3 days in paediatrics, we were discharged with a 'but.' Calin had a terrible virus on her lungs, Pseudomonas aeruginosa. This is not your everyday bacterium that a 2-year-old child is supposed to get. 

A week later, Calin still had a lot of slime and green mucus. Back to the doctor, and were told that Calin has one of the following: 1. It is Cystic Fibrosis;2. She got the germ in an unexplained way.

 

August 21 follow-up visit and had more sputum drawn by Dr. de Waal. 4 days later, and we got her results; she had a high sweat chloride level of 93, with 80 being the cutoff point.

 

Calin's genetic tests were sent overseas for analysis, taking a bit longer than usual. On October 6, I received the call. Junette, are you calm? Can we talk? Well, then your mother's heart knows the news you are about to get, is not what you were hoping for. Calin tested positive for Cystic Fibrosis; she has the delta508 mutation. 

Dr. Zampoli called me on October 9, in between big medical words, I heard Doctor say  "this is a miracle she's still here." The silence was deafening. My ears ringed, the world spinning around you. At the table, as I tried to put all the big medical words together in my head, I see my little miracle in front of me, a lively happy-go-lucky little girl- hopping, running, and singing at the top of her lungs, blissfully unaware of what we, as her parents just learned or knowing what's going on in her little body (that she's actually fighting for breath every second of every minute of every hour of every day). Calin’s mutation is of such an extreme that there is almost no pancreatic function, in other words, she might as well have been born without it.

 

Then the doubts settled in…..Doctor are you sure the results are for our Calin? Couldn’t there be a mistake? She's so full of love, life & energy. How on earth did we get here? How did she make it to 2 years without any medication? I don't know how she digested her food and milk for two full years. I don't know how her weight stayed within the normal range. She's supposed to have a significant weight loss, I don't know where she gets her energy, as nothing she eats or drinks stays in.  

 

She qualifies for the Trixicar/Trikafta medication overseas.  It's incredibly expensive and will be a part of her life. It can never be stopped.

For her lungs, we nebulize twice a day, in the morning and evening. The nebs take about 25 minutes, and physio takes 10 minutes. A

For her pancreas, she must take an enzyme pill with every meal, snack, and liquid to digest the food/beverage. 

For her immunity, she takes a handful of vitamins.

Every 3 to 4 weeks, we will have to visit the Red Cross for x-rays and follow-ups to ensure her lungs are clean and that there's progress.

Donations

  • Feb 27, 2024 - R 925.50 Fees covered
  • "" - Anonymous

  • Dec 06, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Nov 10, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Nov 07, 2023 - R 1 000.00
  • "" - Anonymous

  • Nov 07, 2023 - USD $ 79.29 Fees covered
  • "You've got this Calin! -you dont know YOUR POWER girl! Mammas & Pappas, Oumas & Oupas,, Tannies & Omies, nefies en maaitjies - ONS ALMAL STAAN BANK VAS AGTER ons Calin Warrior." - Tannie Elicia is lief vir jou en jou familie-

  • Nov 07, 2023 - R 2 000.00 Fees covered
  • "Sterkte xx" - Anonymous

  • Oct 31, 2023 - R 1 000.00 Fees covered
  • "Regte klein warrior - dra julle op aan Liewe Jesus🙏🩷" - HVZ🌻

  • Oct 31, 2023 - R 1 000.00 Fees covered
  • "Jy is n regte warrior Calin 💜 Ons hou aan bid vir jou" - Anonymous

  • Oct 31, 2023 - R 500.00
  • "" - Anonymous

  • Oct 27, 2023 - R 1 156.87 Fees covered
  • "Sterkte julle" - Gert Aggenbach

  • Oct 26, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Oct 26, 2023 - R 500.00
  • "" - Anonymous

  • Oct 26, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Oct 26, 2023 - R 500.00 Fees covered
  • "Julle is in ons gebede" - Anonymous

  • Oct 25, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Oct 25, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

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Statistics

Fundraising target

R 800 000.00

Donations to date

R 14 852.94
Donate

Calin Retief CaliBali Campaign

Calin Retief CaliBali Campaign Logo

Calin, a brave 2-year-old, faces the challenges of Cystic Fibrosis, a relentless battle. With your help, we aim to provide lifelong medication, treatments, and support for her 400km trips to the hospital. She's a little fighter, and your contributions can give her a chance at a more fulfilling life. Join us in ensuring Calin's well-being and resilience. Donate today.