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Desiree's Color Run for Scott

Desiree's Color Run for Scott

Personal message

My son Scott Harmse was born on the 14th September 2016,

On the 25th September  they diagnosed him with CHD – he has Tetralogy of Fallot, (with large Ventricular septal defect).

He was discharged on the 1st October 2016. I was happy and nervous.

We took him to two different Opthomoligists, who saw some abnormalities in the left eye. G-Scan results came back confirming he has Microphthalmia (it is a disorder in which one or both eyes are abnormally small) in his case, left eye.

MRI results confirm he has no optic nerve on the left eye – he would not be able to see out of the left eye, the right eye looks perfect. We thank God that he has vision in the 1 eye.

We as people wake up not being grateful for the small things we have we might moan about some things but there are other people battling more than us. I thank God I wake up every morning being healthy and that I can see. I don’t know why my little boy this small must suffer and have all these things wrong with him but I know God has a reason for all of this. I thank God for blessing me with this little boy and I will do whatever I can to give my son the best life possible.

Scott went for his first surgery on the 30 January 2017. They wanted to do a full TOF repair but unfortunately his Pulmonary artery was to small when they opened up his chest. They did a shunt for now and will come back in a few months for a full TOF repair. He is in pain but doing great.

His name is Scott and the meaning is WARRIOR! Follow his progress on Facebook.



Donations to date

R 0.00

Fundraising target

R 20 000.00

Scotts Journey

Scotts Journey Logo

I hoping to raise funds for my sons Physiotherapy, Occupational Therapy and also his Ophthalmologist appointments.