Desiree's Color Run for Scott
- By: Desiree Dunn
- Short URL: https://www.backabuddy.co.za/desirees-color-run-for-scott
My son Scott Harmse was born on the 14th September 2016,
On the 25th September they diagnosed him with CHD – he has Tetralogy of Fallot, (with large Ventricular septal defect).
He was discharged on the 1st October 2016. I was happy and nervous.
We took him to two different Opthomoligists, who saw some abnormalities in the left eye. G-Scan results came back confirming he has Microphthalmia (it is a disorder in which one or both eyes are abnormally small) in his case, left eye.
MRI results confirm he has no optic nerve on the left eye – he would not be able to see out of the left eye, the right eye looks perfect. We thank God that he has vision in the 1 eye.
We as people wake up not being grateful for the small things we have we might moan about some things but there are other people battling more than us. I thank God I wake up every morning being healthy and that I can see. I don’t know why my little boy this small must suffer and have all these things wrong with him but I know God has a reason for all of this. I thank God for blessing me with this little boy and I will do whatever I can to give my son the best life possible.
Scott went for his first surgery on the 30 January 2017. They wanted to do a full TOF repair but unfortunately his Pulmonary artery was to small when they opened up his chest. They did a shunt for now and will come back in a few months for a full TOF repair. He is in pain but doing great.
His name is Scott and the meaning is WARRIOR! Follow his progress on Facebook.