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Baby Levi Medical Journey Funding

Funds Raised:
R 106 077
Fundraising Target:
R 240 000
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Personal message

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Our first grandson Levi was born on 23 January 2023 with a Congenital Heart Defect. Levi has singular ventricle complex - a unique condition that only effects 0.005% of babies. Where a normal heart has 4 chambers that separate oxygenated and unoxygenated blood, Levi’s unique heart only has 1 chamber. In this chamber, oxygenated and unoxygenated blood freely mixes and travels between his body and his lungs, putting pressure on his lungs and not fully saturating his body with oxygen. His condition cannot be fixed, it can only be treated over several years through various invasive open-heart surgeries.

Duan and Cayley were initially presented with three options when they found out about Levi’s condition. Option one was to terminate Cayley’s pregnancy and remove all chances Levi had at life. Option two was to perform the open-heart surgeries. The first of which would have to take place within the first weeks of Levi’s life. A second open-heart surgery after 4-6 months, and the third operation when he’s about 3-4 years old. The third option they were given would be not to do the surgeries and to give Levi hospice care after he was born. 30 years ago, a baby with Levi’s condition only had a 15% chance of survival. Today, due to advancements in modern medicine, children like Levi have an 85% chance to live a “normal” life.

They decided that if they could get 1 second, 1 minute, 1 hour, 1 day, 1 week, or 1 year with Levi, it would be worth it. They decided to choose option two and proceed with planning out Levi’s medical care.

They had to dramatically adapt their lifestyle and living conditions to care for Levi. Duan had to stop working in the live events industry and transition to a career that keeps him home to help Cayley and to be there for Levi in case of an emergency. This shift in careers has left him with a major income deficit in the short term. Cayley likewise had to stop working as caring for a child with this condition requires her attention full-time.

Without the right Medical aid coverage, they would have to come up with more than R3 million (ZAR) for the medical treatments needed for Levi. The costs are already more than R1.3 million after first operation. Their only option was a medical aid membership that fully covers Levi’s medical care, which amounts to about R10,500 (+- $600) per month. Their previous medical aid wouldn’t have covered Levi’s specific condition. This puts a heavy financial burden on them.

Our funding target is R240,000 / $13,000 in total for next 12 months. Our family’s savings are rapidly depleting and urgently need to raise money to help Duan and Cayley cover Levi’s medical journey this year and to help make up the gap in their income in the short term while Duan focusses on furthering his new career. This equates to R20,000 ($1,100) per month which is the amount Duan now needs additionally to give Cayley and Levi the care they need, while Levi will be in and out of the hospital. Levi’s first open-heart surgery at 2 weeks old was a great success with the next operation in 4 month time.

This fundraising is a small way for me to help my son, daughter-in-law and first grandson Levi. My first son Ario was born premature, I know what it feels like to be stuck at an office when your wife and son needs you most. This fundraising is a way for me to help Duan to spend his time focussing on enjoying his boy’s new lease on life instead of worrying about not being able to pay bills, stay focussed on his family without needing to be away from home, as there is a real possibility that Levi might have to be rushed to hospital at a moment’s notice.

I will manage the funds on behalf of my son

I am a husband to an incredible wife, father to my own a prem-baby, father to a faithful son and grandfather of a miracle.

We would appreciate any donations - no matter how small 

Dirk Brouwer.

 

Donations

  • Jul 20, 2023 - R 1 000.00 Fees covered
  • "Best of luck!" - Anonymous

  • Jul 15, 2023 - R 100.00 Fees covered
  • "" - Anonymous

  • Jul 07, 2023 - R 10 000.00 Fees covered
  • "From one heart baby to another. Lots of love, admiration and support for your journey." - Anonymous

  • Jul 04, 2023 - R 500.00 Fees covered
  • "May God bless baby Levi for a full recovery." - Anonymous

  • Jun 30, 2023 - R 520.00
  • "Leon Goosen." - Snapscan

  • Jun 27, 2023 - USD $ 216.10 Fees covered
  • "My name is also Levi. I am turning 3 years old next month. I was born with tricuspid atresia, which means I am also a single ventricle baby. Chicks dig scars :)" - Levi

  • Jun 27, 2023 - R 1 008.79 Fees covered
  • "" - Anonymous

  • Jun 26, 2023 - R 231.37 Fees covered
  • "" - Anonymous

  • Jun 26, 2023 - R 200.00 Fees covered
  • "May your beautiful boy receive all the help needed. 🙏" - Anonymous

  • Jun 22, 2023 - R 350.00 Fees covered
  • "Our thoughts and prays are with you and your family." - Anonymous

  • Jun 20, 2023 - R 200.00 Fees covered
  • "" - Anonymous

  • Jun 20, 2023 - R 500.00 Fees covered
  • "Sending prayers to your little family! As a new father to my own almost 5 month old, i cannot imagine what you're going through." - Anonymous

  • Jun 20, 2023 - R 101.80 Fees covered
  • "Ek glo God het nog groot planne vir hierdie seuntjie!" - Anonymous

  • Jun 20, 2023 - R 200.00 Fees covered
  • "My bydrae is min, maar ek weet waardeur julle gaan. Elke sent help. My kleinseun is oo 3 maande met oogkanker gediagnoseer en ek weet watter enorme koste behandelings kos. Om nie te praat van reiskoste, verlies aan inkomste en alles daarmee saam nie." - Anonymous

  • Jun 20, 2023 - R 10 000.00 Fees covered
  • "Uit genade kan ons help. Kom ons maak ‘n verskil." - Skoolmaat

  • Jun 19, 2023 - USD $ 2.74
  • "" - Anonymous

  • Jun 19, 2023 - R 50.00
  • "God bless you." - Snapscan

  • Jun 19, 2023 - R 200.00
  • "noor schroeder" - Snapscan

  • Jun 19, 2023 - R 200.00
  • "RK" - Snapscan

  • Jun 19, 2023 - R 3 000.00 Fees covered
  • "" - Anonymous

  • Jun 19, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Jun 18, 2023 - USD $ 59.41 Fees covered
  • "" - Anonymous

  • Jun 17, 2023 - R 1 000.00 Fees covered
  • "May your life bring Glory to God." - Anonymous

  • Jun 17, 2023 - R 1 000.00 Fees covered
  • "Be brave and strong, Levi! I believe you'll get healthy soon!" - Anonymous

  • Jun 17, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Jun 17, 2023 - R 200.00 Fees covered
  • "" - Anonymous

  • Jun 17, 2023 - R 5 000.00 Fees covered
  • "" - Anonymous

  • Jun 17, 2023 - R 200.00 Fees covered
  • "Mooiste ou seuntjie!" - Anonymous

  • Jun 17, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Jun 17, 2023 - R 1 000.00 Fees covered
  • "" - Bryan

  • Jun 17, 2023 - R 200.00
  • "" - Anonymous

  • Jun 17, 2023 - R 500.00 Fees covered
  • "Hoop!" - Delia

  • Jun 17, 2023 - USD $ 11.88 Fees covered
  • "Hey guys! Trusting that you will raise all the money you need and so much more! Here's to you little Levi!" - P

  • Jun 16, 2023 - USD $ 100.00
  • "" - Anonymous

  • Jun 16, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - R 200.00 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - R 15 000.00 Fees covered
  • "Wish you all the strength from UAE" - Anonymous

  • Jun 16, 2023 - R 1 000.00
  • "" - Anonymous

  • Jun 16, 2023 - USD $ 29.60 Fees covered
  • "" - Anonymous

  • Jun 16, 2023 - R 100.00 Fees covered
  • "Stay strong God's little gift. So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 41:10. In Jesus Name. Amen." - Anonymous

  • Jun 16, 2023 - R 500.00 Fees covered
  • "Wishing baby Levi all the health afforded by God to all children. Blessings on his parents, grandparents and medical staff. May his courage and determination be a lesson to all of us." - Anonymous

  • Jun 16, 2023 - R 1 000.00 Fees covered
  • "All the best." - Anonymous

  • Jun 16, 2023 - USD $ 11.80 Fees covered
  • "I wish you all the best and hope Levi is received the help he needs." - Bo Germany

  • Jun 15, 2023 - R 2 000.00 Fees covered
  • "As a mom and grandmother, I stand behind young Levi all the way. With a little help from a number of donors, he can grow up to be the best man he is destined to be. Imagine...if he was your child or grandchild." - Anonymous

  • Jun 15, 2023 - R 2 000.00 Fees covered
  • "" - Anonymous

  • Jun 15, 2023 - R 100.00 Fees covered
  • "All of the best in raising the amount required." - Anonymous

  • Jun 15, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Jun 15, 2023 - USD $ 16.21 Fees covered
  • "Hope this helps" - Steve Hulse

  • Jun 15, 2023 - USD $ 29.50 Fees covered
  • "God Bless you all and your beautiful Levi x" - Jan McGlashan

  • Jun 14, 2023 - R 200.00 Fees covered
  • "" - Anonymous

  • Jun 14, 2023 - R 1 000.00 Fees covered
  • "Hope this campaign goes from strength to strength." - Sally Shaw

  • Jun 13, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Jun 13, 2023 - R 10 000.00
  • "Dearest Duan, Cayley & Levi. He sure is the cutest little boy and growing more beautiful all the time! Believing for the best outcome on June 28th. Lotsa love, Glenda - Australia" - Anonymous

  • Jun 01, 2023 - USD $ 270.13 Fees covered
  • "I pray for complete health and great testimony for Jesus!" - Anonymous

  • Jun 01, 2023 - USD $ 32.42 Fees covered
  • "I found this story by a post from #ImStaying I wanted to know more. People helping one another, changing social behavior is the main action that can save our earth for future generations even Levi. We need compassion and empathy to save all of us." - Gail A Thomas

  • Jun 01, 2023 - USD $ 108.05 Fees covered
  • "God Bless that little boy. Praying for him." - Anonymous

  • May 26, 2023 - USD $ 50.00
  • "The Lord bless and Keep you!" - Drew

  • May 23, 2023 - USD $ 108.05 Fees covered
  • "" - Anonymous

  • Apr 18, 2023 - R 500.00
  • "" - Anonymous

  • Apr 07, 2023 - R 500.00 Fees covered
  • "Help graag, ouma Babs" - Anonymous

  • Apr 07, 2023 - R 500.00 Fees covered
  • "Help graag!" - Anonymous

  • Apr 05, 2023 - USD $ 120.62 Fees covered
  • "" - Anonymous

  • Apr 04, 2023 - USD $ 100.00
  • "Wishing little Levi and his family all the best!" - Shana

  • Apr 03, 2023 - USD $ 32.42 Fees covered
  • "God bless from the Netherlands! Stay strong" - Hugo

  • Apr 02, 2023 - R 50.00 Fees covered
  • "" - Anonymous

  • Apr 01, 2023 - USD $ 60.72 Fees covered
  • "You've got this. Much love." - Duard

  • Mar 31, 2023 - R 250.00 Fees covered
  • "For your precious miracle Levi 💗" - Craig & Sue

  • Mar 31, 2023 - R 100.00 Fees covered
  • "Wishing you all the best. Spending time with your family is most important now." - Anonymous

  • Mar 31, 2023 - R 1 000.00 Fees covered
  • "You are often in our thoughts, always in our hearts❤️ all glory to God for his provision & grace." - Anonymous

  • Mar 20, 2023 - R 2 000.00 Fees covered
  • "We pray for Levi's full recovery after all 3 his open heart surgeries. God is good and has a plan with Levi" - Anonymous

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Statistics

Fundraising target

R 240 000.00

Donations to date

R 106 076.81
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Baby Levi Medical Journey Funding Campaign