Javascript is not enabled! Please turn on Javascript to use this site.
Ethan Le Grange

Ethan Le Grange

Personal message

This is the story of our heart warrior and miracle baby Ethan and the 105 days spent in ICU.


“How do you mend a broken heart?

You get a team of the best heart doctors, theatre nurses and an amazing anaesthesiologist and give them the finest tools... They then remove the littlest of little hearts and fix the various ailments that affect it. Once they have completed the mission, they reconnect all of the arteries and suture them back with the finest stitches seen by man, closing the chest with the newly fixed heart beating and humming as it will be doing for the rest of the patient’s life


Our boy Ethan Le Grange, was diagnosed with Total anomalous pulmonary venous drainage (TAPVD), an incredibly rare form of CHD affecting only 1 of every 20 000 born, whereby blood coming from and going to the lungs leaves and enters through the right atrium, meaning blood is constantly being circulated between the heart and the lungs.  Post diagnosis, baby Ethan was transferred to Netcare Sunninghill Hospital, where “he was greeted by an army of Dr’s who decided to do the heart operation on the 21st of November 2019 [one day after arriving]”.  Irene Le Grange, who had given birth to Ethan with C-Section on the 19th managed to get herself discharged and made her way to Sunninghill to see the little life that she carried for nine months, who she had briefly met while in theatre and may not see again.

The operation was a success but during the diagnosis, it was found that Ethan only had one functioning kidney and the chance of him going into renal failure was quite high as the kidneys are one of the organs hit the hardest during a heart operation. Unfortunately, the worst happened and he went into renal failure. He was put on to two-hourly dialysis for a total of 8 weeks. During this time, he picked up an Anti-Biotic resistant bug known as CRE. To compound the issues with his kidney the only drugs that worked would add massive amounts of strain to the already struggling Renal system, to add fuel to the fire he also picked up pneumonia which compounded issues with his already frail system. His lungs started to collapse and started developing Pneumothorax. He had a total of 4 at one time. This prompted the Dr’s to put him on the Oscillator or better known as the washing machine that would vibrate his lungs at high speeds to help clear the air out of the lungs and help them heal. After a few nerve-wracking weeks of intense drug regimens and a few dark moments where we thought that we might be arranging a funeral and not a coming home party, he made an about-turn on the 24th of December 2019. This was our Christmas miracle. He steadily made progress from this date.


Ethan had to go for a few more operations after this date ranging from getting a Tracheostomy, a Vesicostomy and finally a PEG. He was finally ready to come home.

We were told that we could take our little bundle of joy home on the 4th of March 2020, after spending a 105 days in CTICU he finally came home.


He is currently growing from strength to strength and helped us as parents to go beyond what we thought we were capable of and helping the bond between us grow even stronger.


We ask that you please open your hearts and assist us in paying the last of his hospital medical bills so that we can focus on ensuring that he gets the best care and life we can afford.


Thank you

Irene & Phillip

 *As per the campaign creator’s request, a portion of funds raised will be paid directly to the relevant institution. The remaining funds will be managed by the beneficiary*


  • Jun 29, 2020 - R 210.00
  • "Stay strong. We ask God's help in attaining as much help as possible" - Stephen

  • Jun 17, 2020 - USD $ 92.96
  • "Dank die Vader vir Sy genade" - n Ou vriend

  • May 29, 2020 - R 210.00
  • "Stay strong. We ask God's help in attaining as much help as possible" - Stephen

  • Apr 29, 2020 - R 210.00
  • "Stay strong. We ask God's help in attaining as much help as possible" - Stephen

  • Apr 28, 2020 - R 210.00
  • "<3" - Anon

  • Apr 23, 2020 - USD $ 11.21
  • "Get well soon!" - Anon

  • Apr 23, 2020 - R 210.00
  • "Blessings little solider..... " - Anonymous

  • Apr 21, 2020 - R 210.00
  • "Love and happiness" - Anon

  • Mar 30, 2020 - R 210.00
  • "Stay strong. We ask God's help in attaining as much help as possible" - Stephen

  • Mar 29, 2020 - R 1 575.00
  • "Sterkte" - Anonymous

  • Mar 26, 2020 - R 112.00
  • "

    I know its not much, But please keep strong, Best of luck Beautiful Souls <3>" - Charley

  • Mar 24, 2020 - R 500.00
  • "Phillipe - your journey touched my heart on a very personal level - it’s so close to home. Gee vir Hendrikkie n soen en n druk vanaf my." - Danell

  • Mar 22, 2020 - R 512.00
  • "


    " - Sari

  • Mar 20, 2020 - R 1 050.00
  • "All the best guys. Mr T" - Anonymous

  • Mar 18, 2020 - R 1 012.00
  • "

    We will continue praying for your little soldier and send love and light from Doha. We can't wait to meet him

    " - The Chandars

  • Mar 16, 2020 - R 525.00
  • "As a new parent myself, I can only imagine what you guys must have gone through! Best of luck to baby Ethan!" - Andrew Brits

  • Mar 15, 2020 - R 1 050.00
  • "Matthew 6:26-34 May the Lord continue looking after Ethan and may the people on earth, that are daily blessed by the Lord not be afraid to share their financial blessings with Ethan" - Sabrina

  • Mar 13, 2020 - R 1 050.00
  • "Seën oor julle!" - Carlo

  • Mar 13, 2020 - R 525.00
  • "Sterkte julle" - Andre

  • Mar 13, 2020 - R 525.00
  • "Sterkte julle! " - Nici

  • Mar 13, 2020 - R 210.00
  • "Stay strong. We ask God's help in attaining as much help as possible" - Stephen

  • Mar 12, 2020 - USD $ 328.38
  • "You guys are amazing parents. Ethan is incredibly lucky to have you, he's a real fighter. " - Anna

Donate to this charity


Donations to date

R 17 184.55

Fundraising target

R 330 000.00

Ethan Le Grange Medical Cause

Ethan Le Grange Medical Cause Logo

My name is Irene Dege, and I am raising funds for our son, Ethan Le Grange. He was diagnosed with a rare heart condition called TAPVD