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Hayden's Story

Hayden's Story

Personal message

Hayden, at the age of 6 months has been diagnosed with a disease known as Longitudinal Extensive Transverse Myelitis. He was Admitted to ICU immediately. On the 24th of February 2019, We noticed that he was constipated and not moving his legs, Doctors believe a tummy bug he had two weeks before attacked his central nervous system. A MRI showed swelling and damage to the spinal cord (T3-T7), Hayden was paralyzed from just below his nipples down.

Our little warrior has been such a fighter, with the help of the doctors and quick responding to medications, Hayden has regained slight movement in his feet, and left leg. 

As time goes by all we can think about is giving Hayden the best medical treatment available to help him recover and lead the best life possible.  We don’t know much about the disease but are doing as much research as we can. 

Hayden’s first MRI scan cost R27 034.22 there was a shortfall of R 3704.00 and we have reached our limit on scans for the rest of the year as the medical only covered us for R23 330.00. He will need another MRI in the next two months and more than likely another before the end of the year. Tests done in the first 24 hours, pathology bills came to a staggering R9033.60, we are still negotiating with the medical to see if all of this will be covered. The specialist costs, we are seeing the Paediatric neurologist at a cost of R1500.00 per appointment. 

We know there will be more MRI’s, scans, physio, rehabilitation and various other tests. Depending on his progress there could be other therapy needed in the future to help him with reaching milestones, such as speech and so forth. However, a permanent outcome is not known at this point.

Kindly appeal to anyone able to make a donation of any kind.  There is no donation too small every cent will go towards Hayden’s treatments. A full break down of all expenditure will be posted on his Facebook page- Hayden's Story. We will also keep you updated on Hayden’s doctor visits and progress.

Donations

  • Apr 27, 2019 - R 1 028.20
  • "Strength to Hayden, family and friends" - Craig and Michele

  • Apr 04, 2019 - USD $ 70.73
  • "Hope you feel a bit better with every passing day little guy." - Some random Australians

  • Mar 31, 2019 - USD $ 224.73
  • "All the best, Hayden! Wishing you a speedy recovery. " - Anonymous

  • Mar 31, 2019 - USD $ 150.00
  • "Our thoughts are with you all! Hey well soon Hayden!" - Mark and Monica

  • Mar 21, 2019 - USD $ 70.11
  • "Get well soon little guy. KDLL" - Anonymous

  • Mar 20, 2019 - R 2 000.00
  • "Lots of Love Hayden" - Clive, Derron & Kyle

  • Mar 20, 2019 - R 550.00
  • "In memory of Yetta Bat Leah" - Greenberg Family

  • Mar 19, 2019 - R 51.41
  • "Praying for you. " - Lisa Coetzee

  • Mar 19, 2019 - R 514.10
  • "Bid vir jou seuntjie. " - Gerhard

  • Mar 19, 2019 - R 200.00
  • "Sterkte" - M

  • Mar 19, 2019 - R 257.05
  • "By God is niks onmoontlik. Ek bid vir genesing!" - Annelie van Tonder

  • Mar 19, 2019 - R 203.00
  • "Love and prayers" - Therina

  • Mar 18, 2019 - R 1 028.20
  • "Psalm 93" - Anonymous

  • Mar 18, 2019 - R 50.00
  • "????????" - Zanell Du Plessis

  • Mar 18, 2019 - USD $ 5.54
  • "Good luck we pray for your family" - Lizelle Botha

  • Mar 18, 2019 - R 102.82
  • "Baie gebede!" - Anonymous

  • Mar 18, 2019 - R 205.64
  • "Sterkte , bid dat Liewe Jesus vir Hayden en julle sal dra en styf vashou" - Izell Dobson

  • Mar 18, 2019 - R 500.00
  • "Dink aan julle " - Anonymous

  • Mar 18, 2019 - USD $ 70.00
  • "God bless you." - Rykie

  • Mar 17, 2019 - R 514.10
  • "Thinking of you guys ????? Gordon de Bruyn " - Gordon

  • Mar 17, 2019 - USD $ 66.59
  • "Thinking of you guys!!" - Dieter

  • Mar 17, 2019 - USD $ 26.62
  • "Our thoughts are with you all. " - Anonymous

  • Mar 16, 2019 - USD $ 200.00
  • "Sending love and hugs. Fight Hayden!" - Brad, Bernice and kids

  • Mar 16, 2019 - R 2 056.40
  • "Get well soon our darling angel ??????" - Oupa & Granny

  • Mar 15, 2019 - USD $ 68.77
  • "Hope this helps" - Charles

  • Mar 15, 2019 - R 51.41
  • "Get well soon!" - Nadine

  • Mar 15, 2019 - R 1 028.20
  • "All our prayers and well wishes are with you Hayden and family. Lots of love Jeanine and Ella-Jade xxx" - Jeanine Tambellini

  • Mar 15, 2019 - USD $ 1 031.52
  • "Get well soon, Hayden! Thinking of you, Candy and Wes. " - Marcelle Prinsloo Wood

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Statistics

Donations to date

R 38 888.90

Fundraising target

R 50 000.00
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Hayden Hall Medical Cause

Hayden Hall Medical Cause Logo

Hayden, at the age of 6 months has been diagnosed with a disease known as Longitudinal Extensive Transverse Myelitis.
As time goes by all we can think about is giving Hayden the best medical treatment available to help him recover and lead the best life possible.  We don’t know much about the disease but are doing as much research as we can.

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