Javascript is not enabled! Please turn on Javascript to use this site.
Jarco Erasmus

Jarco Erasmus

Personal message

LET US MAKE A DIFFERENCE!!!

Jarco was born on the 29 weeks along with his twin sister, he weighed 970 grams. He spent his first 6 months in hospital and underwent 7 surgeries for, amongst other things, reflux and colostomy. In that time he regularly suffered from apnoea that caused him to lose some frontal lobe brain matter. Afterwards, Jarco was released from hospital for three months and had to be on oxygen. He was behind on his development milestones and could only sit upright at one year old. He received therapy from the baby therapy center however and reached his milestones in his own time. His speech continued to lag behind however and needed specialised therapy for his speech problems. It was only at 3 years and 9 months that he spoke his first word, to everyone's great delight.

At the beginning of 2013, he was diagnosed with a metabolic disease but they are still testing to see which one it is. This might be the cause of his apnea that returned on 2012 Currently he is on a si-pap machine during the night that is doing 88% of breathing.

His is on chronic medication for his lungs, reflux, ADHD, and brain injury as well as for chronic stool softening.

The beginning of 2015 we started with tests and treatment to resolve his stool-incontinence. So far there is ( like so many of his symptoms) no specific cause. He is struggling with severe constipation and started on double the dose for adults. With that, we managed to get him most of the time going on the toilet, but he is still not telling us when it is time. So there is still dirty pants/nappies.

His apnea is still a concern as it is not stabilising and his settings on the machine need to be adjusted every six months.
With a monitor we discovered that he is now hypoventilating( swallow breathing to skip of breaths) and also starting have a very high heartbeat.
We need to see a Geneticist as Doctors suspect he might be suffering from a rare autoimmune disease.

He is attending Meerhof School and is in grade 3. Recently he started to get very tired and has to be fetched from school earlier. It seems as if he is not keeping up with the pace of mainstream in a remedial school and will most probably be moved to a special phase.

However, keeping up with all his medical expenses is an ongoing battle. (60 000 -80 000 per year that is not covered). He is on 9 different medications helping him through the day and maintaining his function, costing alone R6000 per month.
His yearly needs are: A set of splints, a new bi-pap mask, and accessories for the bi-pap machine.
Monthly needs: nappies, chronic medication, meal-replacement drink( frebini/pediasure, etc)

We want to help relieve their financial pressure before December this year so that they can just take a breather over the festive season and just enjoy the season!

It will make their financial stress so much lighter, it will give them hope and let them see the light at the end of this dark tunnel!!

You can follow Jarco's journey here.

Donations

  • Feb 18, 2020 - R 514.10
  • "You are an inspiration to us all" - Anonymous

  • Feb 06, 2020 - R 508.75
  • "Ek is mal oor jou Jarco ?" - Anonymous

  • Jan 13, 2020 - R 101.75
  • "Sterkte" - Anonymous

  • Dec 27, 2019 - R 510.00
  • "

    GOD bless you all.Never give up xx

    " - Henriette

  • Dec 23, 2019 - R 203.50
  • "Geseend" - Anonymous

  • Dec 11, 2019 - R 205.64
  • "Praying for this beautiful family! " - Anonymous

  • Dec 09, 2019 - R 500.00
  • "

    Sterkte H&C

    " - Jaco fan

  • Dec 04, 2019 - R 1 000.00
  • "The night is darkest just before the dawn. And I promise you, the dawn is coming. - Harvey Dent" - Batman????

  • Dec 03, 2019 - R 130.00
  • "

    Jarco is so 'n liewe kind. Altyd vriendelik met die mooiste maniere!

    " - Anonymous

  • Dec 03, 2019 - R 1 010.00
  • "

    Help graag

    " - Anonymous

  • Dec 01, 2019 - R 253.75
  • "Liefde" - Aniske

  • Nov 30, 2019 - R 2 030.00
  • "God’s plan for your life far exceeds the circumstances of your day. " - Andre Burger

  • Nov 29, 2019 - R 152.25
  • "Handelinge 4:30" - <3

  • Nov 29, 2019 - R 205.64
  • "God se genade" - Anonymous

  • Nov 28, 2019 - R 3 000.00
  • "Hoop die biekie help" - Anonymous

  • Nov 27, 2019 - R 500.00
  • "Mag die Here Jesus julle ryklik seën en vir Jarco in gesondheid herstel" - Anonymous

  • Nov 27, 2019 - R 514.10
  • "Hierdie gesin is 'n inspirasie. Ken hulle persoonlik en mamma en pappa het soveel liefde en omgee vir ander ten spyte vd feit dt hulle self deur seer en moeilike tye gaan" - Anonymous

  • Nov 27, 2019 - R 203.00
  • "Let's stand together and help this family!" - Anonynous

  • Nov 27, 2019 - R 1 015.00
  • "I don't really have words. But I know you are loved and I know that God does not make mistakes, thus I know, that also this has a purpose, that will be used for God's kingdom and glory. Love AF" - Anonymous

  • Nov 27, 2019 - R 100.00
  • "Donation" - Anonymous

  • Nov 27, 2019 - R 203.00
  • "Always in my prayers " - Stacy Toughey

  • Nov 27, 2019 - R 203.00
  • "I made the first step!! Follow in my footsteps to help this family!!" - Anonymous

Donate to this charity

Statistics

Donations to date

R 13 063.48

Fundraising target

R 50 000.00
Donate

Jarco Erasmus Medical Cause

Jarco Erasmus Medical Cause Logo

Elsje van Zyl from Hartbeespoort is raising funds for Jarco Erasmus who has a metabolic disease and needs medical support.