Jonathan's Therapy Fund
- By: Dominique Van Der Merwe
- Short URL: https://www.backabuddy.co.za/jonathans-therapy-fund
"My name is Jonathan and I’m 6 years old. I have speech apraxia and an expressive language disorder due to extreme fevers I had when I was sick with acute bacterial Meningitis-(inflammation of the meninges) and Auto-immune Encephalomyelitis-(Inflammation of the brain and spinal cord). This means that I have problems saying sounds, syllables, sentences and words. I know what I want to say, but my brain has difficulty coordinating the muscle movements necessary to say those words. Sadly, the central nervous system injury will not simply disappear as I get older. Research shows that children with apraxia have more success when they receive intensive treatment. With appropriate, intensive intervention, children with this disorder may improve significantly."
Jonathan fell extremely ill in Jan '15 at the age of 2 and the doctors did not have a positive outlook for his situation. He was in PEDS ICU for 5 weeks where he just didn't improve and worsened and he was eventually transferred to a different hospital under the care of a pediatric neurologist where after another 3 weeks he steadily started to recover. He is now 6 years old and has the speech and language ability of a 2 year old. His vestibular system development is also delayed.
If we don't act fast he might end up with a speech board one day as means of communication as the learning path is starting to reach maturity. Please help him so he can truly enjoy life in a communicative and expressive manner.