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Leila's Surgery

Leila's Surgery

Personal message

15/10/2021 

We should have been done with chemotherapy this week. 

Leila should have been ringing the bell to mark the end of her treatment and mark the start of her recovery but that is not how it has gone.

We have not left the hospital since our admission on the 12th September 2021. After may blood cultures, tests, xrays, bone marrow asirations and PET scan, the doctors have told me that the cancer has metastasized and it has exploded in her bone marrow, lungs and spine. She needed emergency surgery on her spine, laminectomy, to decompress the nerves in her spinal column due to surrounding tumors. We are extremely thankful to the team here at Nicklaus Children's , Specifically Dr Maggie Fader whose prompt action saved Leila from becoming a paraplegic and loosing control of her bowel and bladder function... 

Leila is slowly recovering from the spinal surgery, and the pain management team has been wonderful in addressing her pain and working closely with us to find her some long lasting relief. We are trying a different chemotherapy and will assess soon if its had any effect in slowing the progression of the disease. 

Inspite of the amazing care she has received to date here in Miami, sadly her prognosis is not good and it is time for us to go home. I am devastated.

WE have been assigned a stellar Palliative Care team here who are working tirelessly to help us to find comparative health care to manage Leila's condition back home in Johannesburg. I need to be sure that I will be able to get Leila quality care and even with newly acquiring medical aid the waiting periods of 12 months and exclusions for pre-existing condition make it pointless. 

My new goal at the moment is to help Leila heal sufficiently to be able to withstand a 29hr journey home, so that she can be surrounded by her beloved dogs, father, family and friends and find comfort and peace.

In order for this to happen I need so much more help... 

For us to come home I need to know I will be able to continue to care for Leila and remain by her side 24/7, to do that I need to ensure I have sufficient funds available to pay for the bond on my house and monthly payments so that I dont need to find a job immediately, working from home or online may be good future options though.

I will need to find an orthopedic surgeon for following up on her leg healing, an oncologist should we find a chemotherapy treatment she is responsive to, a nurse to help us monitor her at home as well as radiologist for scans to determine diseases status...

We have been in contact with Patch - an NGO providing palliative care for children and they have offered us some support in terms of setting up a hospice type situation at home...

I need to be proactive. I dont have the luxury of time and dont want to be in a position where Leila is too weak and sick to make the trip home.

Please help me help her.

 

LATEST: 21 September  2021

Leila's chemo is on hold just 5 weeks short of finishing.  She was admitted through the ER last Sunday 12/09. We have been in the hospital since then. MRI, CT scans, blood cultures, antibiotics later and she is still on morphine just to manage her pain. There are signs of Avascular necrosis in her hips and knees as well as neuropathy. 

She can not stand up nor walk with crutches. 

I dont know what the timeline is anymore... All I know is that we need to keep going  forward...

13/08/2021 UPDATE!!

Leila had the limb salvage surgery on the 11th May 2021, just over a month after arriving in the US. She had 10cm of  her tibia removed and replaced with a donor bone which is held in place with two metal plates and screws. The superficial wound has healed nicely, however she is non-weight bearing on the leg until the consolidation chemo is complete. She has approximately 9 weeks left to go.

Only 6-8 weeks after the chemo is finished can the surgeon assess the bone growth. She has lost some of the flexibility to her ankle and will require physio therapy at best...at worst additional surgery (stem cells to stimulate bone growth  and lengthening of tendons for ankle flexibility). So we have a while to go... at least another 6 months without complications 

We are hopeful that all will be well and she will be declared Cancer free and walking so that we will be able to return home for Xmas...

Recovery after surgery was the worst part of this journey and she was on very strong narcotics to deal with the pain for almost 10 days post surgery, Diazepam and oxycodone! She ploughed through it all always with a sweet smile on her face. It was extremely difficult to watch her suffer that level of pain. Since then, thankfully the chemotherapy has continued with minor side effects, a few blood and a couple of platelett transfusions has been the worst of it...touch wood. 

In the meantime, I am searching for possible ways to source an income to continue to pay for our stay in the US...  funds are fast depleting causing my anxiety to escalate... no income and continuing to pay the bond on my house and bills back home while living in the US is not cheap! :(

I know everything will be alright and am eagerly anticipating the end of this chapter and the beginning of a new one filled with love, joy, health and abundance in her future.

Again a million thanks to every single one of you who have assisted us and made this healing for Leila possible. 

25/3 UPDATE!!

It has been 3 weeks since starting this campaign and we have raised R375259.55!

THANK YOU! THANK YOU! THANK YOU! I am eternally grateful and so humbled by the love and support of all our friends, school community, my colleagues and kind strangers... 

Although we have not raised the R800 000.00 needed for the Surgeon to book Leila's surgery locally...

A Miracle has happened!

My cousin Raul in Chile and his friend Marzia in the USA have found us an organisation willing to cover the cost of Leila's surgery and remaining maintenance chemo at the Nicklaus Children's Hospital in Miami.

We have been given B2 medical emergency visas and will be flying to Miami in the first week of April!

The money we have raised so far will go towards our flights to Miami and living expenses as we will need to stay a minimum of 6 months to a year and I will not have an income during this time.

I have been asked to justify the amount we need but honestly I dont know exactly how much we need and I need to ensure that whatever happens Leila's well-being is prioritised...not only with this urgent surgery but also coming back home and in her long term future...

 

Donations

  • Dec 01, 2021 - USD $ 50.00
  • "Praying that His Grace will be enough to get you through each day." - Van Rensburg Family

  • Dec 01, 2021 - R 1 500.00
  • "Sending you so much love and light at this heartbreaking time x" - Oscar’s Folks

  • Nov 30, 2021 - USD $ 49.93
  • "May your beautiful daughter's soul rest in peace. My sincerest condolences. " - Sandra Changuion

  • Nov 29, 2021 - USD $ 35.04
  • "So sorry for your loss" - Yvonne Smith

  • Nov 29, 2021 - USD $ 62.06
  • "Sending love and strength your way Katherine and family" - Mostert family

  • Nov 29, 2021 - USD $ 50.00
  • "Prayers for peace and comfort as they grieve " - steyn, barbara

  • Nov 29, 2021 - USD $ 15.00
  • "So sorry for your loss! ️ " - Melissa Coetzee

  • Nov 26, 2021 - USD $ 12.39
  • "Hey JP, it's Sakhe. I cry along with you brother." - Charles Rali

  • Nov 26, 2021 - R 1 000.00
  • "

    My thoughts are with you, I understand your journey somewhat from personal experience. I pray for your courage along with healing.

    " - Dave

  • Nov 26, 2021 - R 500.00
  • "Praying for you Leila and Kat!" - Kevin

  • Nov 25, 2021 - USD $ 62.96
  • "Wishing Leila and family lots of strength " - Katja

  • Nov 25, 2021 - R 1 000.00
  • "Best wishes " - Anonymous

  • Nov 25, 2021 - USD $ 20.00
  • "Wish I could do more JPs. Lou will pay you the other R1750. " - Jon

  • Nov 25, 2021 - R 200.00
  • "I hope you manage to get home to SA. Such a brave young girl! " - Megan

  • Nov 25, 2021 - USD $ 314.80
  • "I hope and pray that you and your precious family will be comforted." - Wazza

  • Nov 25, 2021 - USD $ 31.48
  • "Hope this helps." - G

  • Nov 25, 2021 - USD $ 100.00
  • "Todo nuestro corazón con la familia " - Macchiavello - Barros

  • Nov 25, 2021 - USD $ 126.17
  • "Love to you all " - Ilona

  • Nov 24, 2021 - USD $ 31.54
  • "Praying for you" - Jonathan F

  • Nov 24, 2021 - USD $ 47.31
  • "Love and strength to Leila and her family" - Sarah Gordon

  • Nov 24, 2021 - USD $ 63.09
  • "I am devastated to hear this and wish you all strength and so much love to hold you up during this painful time. " - Charlotte Greenberg (Vanessa’s Daughter)

  • Nov 24, 2021 - R 500.00
  • "Sending love and prayers to your family from ours " - Kath T

  • Nov 24, 2021 - R 500.00
  • "I hope for the best" - Jelena Kucan

  • Nov 17, 2021 - R 200.00
  • "Sending healing love " - Catherine Nixon

  • Nov 15, 2021 - USD $ 32.59
  • "We pray for Leila and you " - Marie Oceanne’s mum

  • Nov 12, 2021 - R 2 000.00
  • "Sending love, strength and prayers to you both." - Faeeza Khan

  • Nov 11, 2021 - USD $ 98.64
  • "My thoughts are with you. " - Sam

  • Nov 08, 2021 - R 1 000.00
  • "

    Miracles Happen

    " - Martin

  • Nov 01, 2021 - R 500.00
  • "Dear Katherine & Leila, sending you strength, love, hugs & prayers from the Sepulvedas" - Elaine Sepulveda

  • Oct 31, 2021 - USD $ 65.59
  • "Todo lo mejor para Laila" - Godoy Magdalena

  • Oct 29, 2021 - USD $ 39.65
  • "Sending you strength and love. Keep fighting for your beautiful daughter xxx" - Francisco V.

  • Oct 27, 2021 - R 1 000.00
  • "Wishing you lots of strength!" - Adriana

  • Oct 27, 2021 - USD $ 67.37
  • "Thinking and praying for you Leila and Mom." - Maita Lazarus

  • Oct 26, 2021 - R 1 000.00
  • "

    We send you a lot of strength and love.

    " - Nathalie and Jean-Philippe

  • Oct 25, 2021 - R 500.00
  • "Praying for you Leila" - LH

  • Oct 25, 2021 - R 500.00
  • "Lots of love " - Friend

  • Oct 25, 2021 - R 1 000.00
  • "

    Sending love and strength to you all!

    " - Anonymous

  • Oct 23, 2021 - USD $ 336.71
  • "Leila, you are so brave and we are very proud of you! We send you all of our love! " - Anonymous

  • Oct 22, 2021 - R 400.00
  • "You are so very brave Leila. We in South Africa are all rooting for you. " - Barbara

  • Oct 22, 2021 - R 5 000.00
  • "Sending you all love and peace" - Johannesburg Mom

  • Oct 22, 2021 - R 200.00
  • "May the Almighty cure you Leila and grant ease and peace to you and your family. Much love to you and your mum." - Anonymous

  • Oct 22, 2021 - USD $ 58.89
  • "We pray for you!" - Bea

  • Oct 22, 2021 - USD $ 20.25
  • "Be strong and have faith" - Joe Garcia

  • Oct 22, 2021 - R 200.00
  • "Sending love and strength to this family " - CT mum

  • Oct 22, 2021 - USD $ 400.27
  • "<3" - Sal Fazio

  • Oct 21, 2021 - USD $ 69.45
  • "Your are in our heart! " - Julie Steinier

  • Oct 21, 2021 - R 500.00
  • "We wish you strength and a speedy recovery. " - Shelley

  • Oct 21, 2021 - USD $ 104.18
  • "Estamos con vosotras ️" - Tarak

  • Oct 21, 2021 - USD $ 25.00
  • "Sending love, hope and strength." - Alexa

  • Oct 20, 2021 - USD $ 110.21
  • "My heart is with you and Leila" - Eulalie

  • Oct 20, 2021 - R 500.00
  • "Kathrine Stay strong as you know ; Leila needs you so much and we are here for you. Lots of Love ️ Solange" - Solange

  • Oct 20, 2021 - R 500.00
  • "

    Thinking of you, with love x

    " - Caryn Lacey

  • Oct 20, 2021 - USD $ 344.39
  • "We are thinking of you both xx" - Simone Doherty

  • Oct 20, 2021 - R 500.00
  • "Thinking of you and Leila and admiring the courage of you both. " - Jeanine Kerr

  • Oct 19, 2021 - R 500.00
  • "All the best" - Lise

  • Oct 19, 2021 - USD $ 29.83
  • "Sending love" - Sarah

  • Oct 19, 2021 - R 200.00
  • "Thinking of you both and sending all our love and strength. Come home. " - Jennifer Spencer

  • Oct 19, 2021 - R 500.00
  • "

    with love

    " - Trish Heslop

  • Oct 19, 2021 - R 5 000.00
  • "

    My wish is that you make it. You are very admired and loved.

    " - Tamara Osso

  • Oct 19, 2021 - USD $ 136.22
  • "Thank Majo for her help." - Annick

  • Oct 19, 2021 - USD $ 13.62
  • "Praying for Leila and family. " - Nathalie

  • Oct 19, 2021 - R 500.00
  • "Sending lots of love. " - Angelique

  • Oct 18, 2021 - USD $ 41.06
  • "Sending lots of love -- from a friend of a friend" - Karah Pedersen

  • Oct 18, 2021 - USD $ 342.13
  • "Katherine, I wish you and Leila a safe trip back home. I can just imagine how exhausted you must be physically and emotionally, I am here to help in any way I can. " - Smith Lorène

  • Oct 18, 2021 - R 500.00
  • "We are all thinking of you and send love and strength." - Fiona Pole and family

  • Oct 18, 2021 - USD $ 342.13
  • "Found your story via Josh, prayers and hope for you all " - Krissy

  • Oct 18, 2021 - USD $ 6.84
  • "Thinking of you all" - Anonymous

  • Oct 18, 2021 - USD $ 34.21
  • "So sorry to learn about this from old buddy Josh. Hoping to hear positive healing updates. " - Brad Einhorn

  • Oct 18, 2021 - USD $ 136.85
  • "Hi Katherine and Leila. We are sending you suitcases, bags, handbags of love. " - Debut Prinsloo family

  • Oct 17, 2021 - USD $ 136.93
  • "with love from your family down under xx" - Andy, George and cousin Leila

  • Oct 17, 2021 - USD $ 14.85
  • "All the best to Leila and family" - Anonymous

  • Oct 17, 2021 - USD $ 19.90
  • "Sending peace and love during this time " - Arielle

  • Oct 17, 2021 - USD $ 95.85
  • "Prayers Prayers Prayers " - Crlenjak Family

  • Oct 17, 2021 - USD $ 100.00
  • "Prayers" - Anonymous

  • Oct 17, 2021 - USD $ 13.69
  • "Sorry I can’t give you more right now Katherine, I will do as soon as I am able. I am devastated for you and Leila, my friend. Sending all my love to you️" - Aimee

  • Oct 17, 2021 - USD $ 40.23
  • "Thinking of you." - HL

  • Oct 17, 2021 - USD $ 20.54
  • "Love to Leila and family from Susan’s friend in Tokyo. " - Anonymous

  • Oct 17, 2021 - R 250.00
  • "Con amor y esperanza " - Hass and Nick

  • Oct 17, 2021 - R 20.00
  • "Wish I could do more. Fuerza !!!" - Manuel

  • Oct 17, 2021 - USD $ 149.27
  • "Get well soon Leila!!! From your auntie Susan xxx" - Susan Mesureur

  • Oct 17, 2021 - USD $ 13.69
  • "A little hopefully goes a long way " - Anon

  • Oct 17, 2021 - USD $ 57.99
  • "Sending all my love and support " - Chloé

  • Oct 17, 2021 - USD $ 342.33
  • "Dear Katherine, Russell and I are devastated to hear this news. Wishing you so much love and hoping for a miracle." - Dreisenstock Kim

  • Oct 17, 2021 - R 10 000.00
  • "Praying for you and sending you lots of Love and Strength" - Xen and Andrea Hojem

  • Oct 17, 2021 - USD $ 342.33
  • "Stay strong. " - Philip and Nadine

  • Oct 17, 2021 - USD $ 136.93
  • "Best of luck Leila " - Trevor Nathan

  • Oct 17, 2021 - USD $ 180.00
  • "Sending many prayers and lots of hugs." - Terri Braun

  • Oct 10, 2021 - USD $ 500.00
  • "Sending our thoughts and prayers " - Murphys

  • Oct 05, 2021 - R 1 000.00
  • "May God grant you both ease during this journey and healing for Leila Ameen" - Faeeza Khan

  • Oct 04, 2021 - R 1 000.00
  • "

    Love you both - me and the girls

    " - Rushka

  • Oct 01, 2021 - R 200.00
  • "Stay strong" - Greg

  • Sep 30, 2021 - R 1 000.00
  • "I hope this helps, stay strong Leila and Katherine!" - Kabir Dhupelia

  • Sep 30, 2021 - R 100.00
  • "Lots of love " - Leah

  • Sep 30, 2021 - R 200.00
  • "Thinking of you " - Gloria Senior

  • Sep 29, 2021 - R 500.00
  • "Strength and love from Death By Ninja, Inishi8, Roll One, and JHBHC" - Gord

  • Sep 29, 2021 - R 500.00
  • "God bless" - Pepi

  • Sep 29, 2021 - R 1 000.00
  • "You’ve got this! Stay strong! " - FUZIGISH

  • Sep 29, 2021 - USD $ 33.10
  • "Bless you!" - Dominique otto

  • Sep 28, 2021 - USD $ 101.14
  • "Love you" - Anissy

  • Sep 27, 2021 - R 500.00
  • "Thinking of you both" - JP and Lucy

  • Aug 16, 2021 - R 1 000.00
  • "Love you sister " - Lele

  • May 28, 2021 - R 16 500.00
  • "

    Lots of love to Leila

    " - FUNDRAISER

  • May 19, 2021 - R 3 000.00
  • "In God we trust. Love and best wishes to you both!" - Meloy

  • May 06, 2021 - USD $ 10.00
  • "I’m standing by you in my support " - Nicole

  • Apr 16, 2021 - USD $ 141.00
  • "We are praying for you Leila and know that God has everything under control. Wished I could give you a big hug Kat. Believe In Miracles :)" - Maïta & Jenna

  • Apr 11, 2021 - USD $ 650.00
  • "HI Katherine, we are praying for Leila here! With Love, Fabricio, Leticia and Bia" - Fabricio Bloisi

  • Apr 09, 2021 - USD $ 15.00
  • "Best of luck! You can do it!" - Liam

  • Apr 08, 2021 - USD $ 120.00
  • "With our love to Leila and her family" - Anonymous

  • Apr 05, 2021 - R 1 000.00
  • "Whishing you all the best" - Anonymous

  • Apr 02, 2021 - R 3 000.00
  • "Leila, you are a precious warrior with a super Mom - You've got this!!!! Sending you both tons of love and healing energy your way." - Andrea & Xen Hojem

  • Apr 01, 2021 - R 1 000.00
  • "Wishing you all the best for Leila's surgery. We are praying for her full recovery." - Shemila Merali

  • Mar 31, 2021 - USD $ 66.94
  • "Choose abundance, joy and laughter as your best medicines on the path of healing and wellbeing. Enjoy the medical tourism adventure!" - Like Dominique Warner

  • Mar 31, 2021 - USD $ 66.94
  • "Sending you prayers and best wishes. " - Teresa LeSage

  • Mar 30, 2021 - R 1 000.00
  • "

    God Bless

    " - Zubada Khan

  • Mar 30, 2021 - R 3 000.00
  • "

    Que tengáis mucha fuerza y ánimo. Os deseamos lo mejor. Un abrazo fuerte Catarina.

    " - Veronique & Maurice

  • Mar 29, 2021 - R 1 000.00
  • "Je pense très fort a toi Leila!" - Eva 6eme

  • Mar 28, 2021 - R 1 000.00
  • "To appropriate and best therapy for Laila " - Anonymous

  • Mar 28, 2021 - R 1 000.00
  • "We give Leila all our positive vibrations. You are full of energy and will overcome it !" - GUILLAUME

  • Mar 28, 2021 - R 1 000.00
  • "We wish you very Quick recovery" - Anonymous

  • Mar 27, 2021 - R 1 000.00
  • "Wish you all the best Layla!" - Anonymous

  • Mar 27, 2021 - USD $ 133.25
  • "Nuestra corazón está contigo" - Anonymous

  • Mar 27, 2021 - R 50 000.00
  • "Take very good care and thinking about you. O+T+L+M" - Anonymous

  • Mar 27, 2021 - R 200.00
  • "Lot’s of energy for the brave parents and her dear child" - Someone

  • Mar 26, 2021 - R 1 000.00
  • "keep fighting." - Anonymous

  • Mar 26, 2021 - R 500.00
  • "During lockdown, our puppy Oh-dis had to have immediate surgery and with low funds we were struggling. You both helped us and we thank you, now it's your turn" - Natalie Rösner

  • Mar 26, 2021 - R 1 000.00
  • "Wishing you all the best for a successful outcome in the USA" - Anonymous

  • Mar 26, 2021 - R 2 000.00
  • "sorry for all this we wish Leila will get better soon" - Raphaelle L.

  • Mar 26, 2021 - R 1 000.00
  • "Get well soon!" - Myles, Natalie and Clint

  • Mar 26, 2021 - R 500.00
  • "All the best for your recovery " - Valerie

  • Mar 25, 2021 - R 500.00
  • "Yeah go Leila woooo!" - Tyron

  • Mar 25, 2021 - R 1 000.00
  • "

    Lots of love to Leila and her family

    " - Veronica Stewart

  • Mar 24, 2021 - USD $ 500.82
  • "Con mucho amor de Pascal y Baltazar" - Valeria & Mauro

  • Mar 23, 2021 - R 500.00
  • "You are a warrior, Leila " - Toni B

  • Mar 23, 2021 - R 10 000.00
  • "Strength and light - Sheni (vks)" - Sheni

  • Mar 23, 2021 - USD $ 305.52
  • "Dear Katherine and Leila, sending you love from Olivia, Cami, Kim and Russell" - Dreisenstock Family

  • Mar 23, 2021 - USD $ 678.94
  • "Dear Leila and Katherine, keep fighting!" - Martin, Annemarie, Yannes and Sterre

  • Mar 23, 2021 - USD $ 44.13
  • "Hi Leila! I’m a friend to your auntie Caroline. Sending you positive vibes and wish you the very best! Warmest hugs to you. Xxx" - Julie

  • Mar 23, 2021 - R 10 000.00
  • "

    We have been where you are when our daughter Katelyn got cancer. I am happy to say she is in full remission and back to being her happy heathy self. We hope that this helps you reach your goal.

    " - Brand Family

  • Mar 23, 2021 - USD $ 200.00
  • "Katherine: You and Leila are in our thoughts and prayers...Leila, you are an inspiration! " - The Clancy Family (Sarah, Lee, Finn & Sevi)

  • Mar 22, 2021 - USD $ 100.00
  • "Wishing you all well" - John K

  • Mar 22, 2021 - USD $ 339.64
  • "All the best " - Anonymous

  • Mar 22, 2021 - USD $ 277.30
  • "Dear Leila, get well soon. Sending lots of love and hugs xx" - Ann & Shoko Townhill

  • Mar 22, 2021 - R 2 390.00
  • "Dale Leila!!!!" - Camilo

  • Mar 19, 2021 - USD $ 270.42
  • "Mucha fuerza para Leila y Kat" - Veronica

  • Mar 18, 2021 - USD $ 13.44
  • "Get well soon beautiful little queen x" - Tilana

  • Mar 18, 2021 - R 1 000.00
  • "Our thoughts are with you both - cannot imagine going through this with our own daughter and still having to worry how we are going to pay our bills. hope this little bit helps" - Lauren

  • Mar 18, 2021 - R 2 000.00
  • "

    Get well soon Leila- Ayaan

    " - Ayaan

  • Mar 17, 2021 - R 1 000.00
  • "Courage, strength and lots of light as you embark on this journey to recovery " - Kirti Menon

  • Mar 16, 2021 - USD $ 33.61
  • "Con mucho amor y esperanza " - Hassive y Nicolás

  • Mar 16, 2021 - R 500.00
  • "Wishing Leila a speedy recovery" - Juliette jarlet

  • Mar 16, 2021 - R 10 000.00
  • "Pensando em ti Leila" - Anonymous

  • Mar 16, 2021 - R 200.00
  • "Wishing you all the best " - Anon

  • Mar 16, 2021 - R 100.00
  • "

    Lord Jesus be with you

    " - Sharon

  • Mar 16, 2021 - R 200.00
  • "

    Thinking of you.

    " - Mandy

  • Mar 16, 2021 - R 200.00
  • "

    All the best

    " - Van den Bosch

  • Mar 16, 2021 - R 500.00
  • "

    Leila we are all thinking of you and send lots of love.

    " - Fiona Pole

  • Mar 16, 2021 - R 1 000.00
  • "

    Courage

    " - Mailys

  • Mar 16, 2021 - R 1 000.00
  • "

    Be strong and beat this.

    " - Anonymous

  • Mar 16, 2021 - R 500.00
  • "

    You can beat this

    " - Peter

  • Mar 15, 2021 - USD $ 334.25
  • "No behalve of my sons birthday present. Love" - Anar Rochkovski

  • Mar 15, 2021 - R 500.00
  • "Hope you can get the treatment needed" - Kate

  • Mar 15, 2021 - R 500.00
  • "May all your wishes be granted " - Yolanda

  • Mar 15, 2021 - R 1 000.00
  • "All the best!" - Joe

  • Mar 15, 2021 - R 200.00
  • "Love and light " - Lisa

  • Mar 15, 2021 - R 100.00
  • "Thinking of you and your family" - Mandy Clayton

  • Mar 15, 2021 - R 200.00
  • "Get well soon" - Junaid

  • Mar 15, 2021 - R 200.00
  • "Together we can make miracles happen." - Anonymous

  • Mar 15, 2021 - R 200.00
  • "May Laila be healed eternally..." - B

  • Mar 15, 2021 - USD $ 69.51
  • "Wishing you all the best" - Kyleigh G

  • Mar 15, 2021 - R 200.00
  • "All the best! " - Jacqueline

  • Mar 15, 2021 - R 5 000.00
  • "Wishing you all the best Leila" - Wayne

  • Mar 15, 2021 - R 200.00
  • "

    Leila you are a rockstar! You have been through so much and we are rooting for you! Get well soon beautiful girl.

    " - Karen

  • Mar 15, 2021 - R 250.00
  • "

    Get well Leila. We’re all pulling for you.

    " - John-Paul

  • Mar 15, 2021 - R 500.00
  • "

    Stay strong and keep that smile

    " - Dewald Erasmus

  • Mar 15, 2021 - R 500.00
  • "

    Get well soon.

    " - Vivian and Edna

  • Mar 15, 2021 - R 2 000.00
  • "Beat this thing!" - Anonymous

  • Mar 15, 2021 - R 200.00
  • "

    Take cate and do not forget to pray.

    " - Heike

  • Mar 15, 2021 - USD $ 6.68
  • "Love to you. God bless." - Yulandi Van Zyl

  • Mar 15, 2021 - R 200.00
  • "May Allah grant you good health and prosperity " - Anonymous

  • Mar 14, 2021 - USD $ 33.42
  • "Get well beautiful girl!" - Ingrid

  • Mar 14, 2021 - R 400.00
  • "May she recover fully and live a long and happy life!" - Karin Duchenne

  • Mar 14, 2021 - R 5 000.00
  • "God Bless" - The Leong’s

  • Mar 14, 2021 - R 200.00
  • "Praying for your recovery" - Su

  • Mar 14, 2021 - R 100.00
  • "Sending prayers for full recovery " - Elke Van den Berg

  • Mar 14, 2021 - USD $ 13.37
  • "Wishing you all the best, God bless. " - Shaleen

  • Mar 14, 2021 - R 100.00
  • "Wishing you a speedy recovery " - Anonymous

  • Mar 14, 2021 - R 200.00
  • "Thinking of you x " - AO

  • Mar 14, 2021 - USD $ 66.85
  • "Let your dreams change the reality, don’t let your reality change your dreams." - Carlos Mendes and Maria Mendes

  • Mar 14, 2021 - R 200.00
  • "Get well beautiful girl" - Ryan Vaughn

  • Mar 13, 2021 - R 1 080.00
  • "God should look after you and your mom and He should bless you both with a long and happy life." - Balkin Family

  • Mar 13, 2021 - R 100.00
  • "I pray for God's complete healing over your daughters life" - PSD

  • Mar 13, 2021 - USD $ 40.11
  • "Las mejores de las buenas energías y vibras para ti leila!!! " - Boris

  • Mar 13, 2021 - R 1 000.00
  • "Keep smiling!" - Anonymous

  • Mar 13, 2021 - R 1 000.00
  • "Keeping you both in our thoughts and sending all our support. Take care." - Sabrina & Augustin

  • Mar 13, 2021 - R 60.00
  • "Keeping in prayers." - Ilona

  • Mar 13, 2021 - R 2 000.00
  • "Success with the treatment. Sending love to you and Leila. Marion kilgallon. " - Marion kilgallon

  • Mar 13, 2021 - R 7 000.00
  • "with love, Karen and Family" - Karen

  • Mar 13, 2021 - R 500.00
  • "Get well soon little one" - Anonymous

  • Mar 13, 2021 - R 15 000.00
  • "With love from Kate and Julia " - Gary Oertel

  • Mar 13, 2021 - R 267.76
  • "Courage" - Peltier

  • Mar 13, 2021 - R 1 000.00
  • "Dear Leila I pray for God’s healing hand on your life." - Andro

  • Mar 13, 2021 - R 50.00
  • "Praying God bless you Leila" - Rish

  • Mar 13, 2021 - R 100.00
  • "May God keep you strong and praying for you." - Deborah

  • Mar 13, 2021 - R 200.00
  • "Hope you get your surgery soon. God bless" - Lourens

  • Mar 13, 2021 - R 500.00
  • "Get well" - Wayne

  • Mar 13, 2021 - R 500.00
  • "Sending love & hugs to get better soon " - Lynn

  • Mar 13, 2021 - R 201.00
  • "Get well soon" - Mayur

  • Mar 13, 2021 - R 1 000.00
  • "Get well soon." - Darron

  • Mar 13, 2021 - R 200.00
  • "Sending lots of hugs and love to you young soul. " - Shaun Manzi

  • Mar 13, 2021 - USD $ 13.37
  • "Best wishes." - Deepak

  • Mar 13, 2021 - R 200.00
  • "Believe in Jesus Christ" - Anonymous

  • Mar 13, 2021 - USD $ 46.79
  • "You are such a brave girl! " - Mohammed

  • Mar 12, 2021 - R 100.00
  • "You are such a beautiful girl with a fighting spirit. Kick cancer's butt!" - Annika

  • Mar 12, 2021 - R 300.00
  • "Keeping you both in my prayers " - J

  • Mar 12, 2021 - USD $ 67.21
  • "By the Blood of Jesus, Leila is set free from cancer ! Amen " - Holy Spirit Fire

  • Mar 12, 2021 - R 1 000.00
  • "All the best Leila " - Sheldon

  • Mar 12, 2021 - USD $ 14.21
  • "Anonymous donation" - Anonymous

  • Mar 12, 2021 - R 300.00
  • "All the best to you and a complete recovery. My prayers are with you" - Anonymous

  • Mar 12, 2021 - R 10 000.00
  • "All the best Leila" - Anonymous

  • Mar 12, 2021 - R 100.00
  • "God bless " - Fungai Blake

  • Mar 12, 2021 - USD $ 336.06
  • "hope everything works out well" - Anonymous

  • Mar 12, 2021 - R 1 000.00
  • "Healing to Leila... and Kat!" - Gus

  • Mar 12, 2021 - R 100.00
  • "I don't have a job at the moment, but I give what I can. " - Anonymous

  • Mar 12, 2021 - R 1 000.00
  • "Good luck and keep strong! I will never be a member of Discovery again. \" - Jacques Blignaut

  • Mar 12, 2021 - R 5 000.00
  • "Hope she gets well soon she is in the Lord's hands" - Jaco Vosloo

  • Mar 12, 2021 - R 200.00
  • "May you receive your goal and best of luck to Leila's surgery" - Karien

  • Mar 12, 2021 - R 40 000.00
  • "Lots of love from our family to you Leila and Katherine. Thinking and praying for you every day. " - Sand J

  • Mar 12, 2021 - USD $ 67.21
  • "All the best, hope you reach your target" - James Hunter

  • Mar 12, 2021 - R 1 000.00
  • "Wishing you all the best for the best possible outcome." - Anonymous

  • Mar 12, 2021 - R 1 000.00
  • "Stay strong!" - Frank

  • Mar 12, 2021 - R 400.00
  • "Keep faith in God" - Anonymous

  • Mar 12, 2021 - USD $ 5.00
  • "Best wishesh i hope and pray for Leila to be fine.Stay strong!" - George

  • Mar 12, 2021 - USD $ 10.08
  • "May God keep on touching people’s hearts." - Jonatao

  • Mar 12, 2021 - R 200.00
  • "Sending love and healing .. Kim and Sammi" - Kim

  • Mar 12, 2021 - USD $ 500.00
  • "Wishing you the best! Stay strong!" - Kirstin

  • Mar 11, 2021 - R 10 000.00
  • "Be strong girls !" - favorite twins

  • Mar 11, 2021 - R 500.00
  • "Praying for you Leila...get well soon! " - Kevin

  • Mar 11, 2021 - R 500.00
  • "Love, Hugs and Sunshine. " - Lisa MS

  • Mar 11, 2021 - USD $ 100.00
  • "Sending love and keeping you in our thoughts!" - Sarah & Bryan

  • Mar 11, 2021 - USD $ 350.00
  • "Thinking of you and wishing you strength through this time xo" - Alex Hing

  • Mar 11, 2021 - R 500.00
  • "Sending love & hope to you Lelia & Katherine" - Claire

  • Mar 11, 2021 - USD $ 65.43
  • "Sending our best wishes for a speedy recovery" - Anonymous

  • Mar 11, 2021 - USD $ 1 635.85
  • "Con la fe y esperanza que todo saldrá bien. Besos a Leila. " - Reyes & Klein

  • Mar 11, 2021 - R 250.00
  • "Wish I could give all the money needed! Sending so much love!" - Mariapaola

  • Mar 11, 2021 - R 500.00
  • "Sending positive vibes for you and Leila to get through this xxx" - Lorraine

  • Mar 11, 2021 - R 500.00
  • "Thinking of you and Leila during these tough times, sending you guys lots of love, positivity and big hugs. " - Sarah

  • Mar 11, 2021 - USD $ 6.54
  • "Every little cent helps " - Anon

  • Mar 11, 2021 - R 300.00
  • "Praying for you Kat and Leila" - Anon

  • Mar 11, 2021 - R 200.00
  • "You've got this Leila! We are all rooting for you young lady :-)" - Brad

  • Mar 11, 2021 - R 200.00
  • "

    Praying for you little one

    " - Shirley Heuer

  • Mar 11, 2021 - R 1 000.00
  • "

    Lots of love x

    " - Seona Stewart

  • Mar 11, 2021 - USD $ 50.00
  • "." - Anonymous

  • Mar 11, 2021 - USD $ 79.06
  • "Wish the best!" - Christiane Alary

  • Mar 10, 2021 - USD $ 32.47
  • "Get well soon sweet girl " - Ilona

  • Mar 10, 2021 - R 1 000.00
  • "Sending love. You’ve got this." - Giuditta

  • Mar 10, 2021 - R 200.00
  • "Our thoughts and prayers are with your little girl and with you as a family. " - Sylvie Botha

  • Mar 10, 2021 - R 2 000.00
  • "Good luck !!!!" - Mike

  • Mar 10, 2021 - USD $ 324.75
  • "Best wishes and thoughts and love and everything. ( 3 )" - Germain

  • Mar 10, 2021 - R 1 000.00
  • "Rooting for you Leila. From Jaime Vallar" - Jaime Vallar

  • Mar 10, 2021 - USD $ 12.99
  • "Sending you lots of positive and healing vibes, Leila! Love from Japan. " - Anonymous

  • Mar 10, 2021 - USD $ 250.00
  • "Get well soon Leila, and come see us in Japan!" - Susan Townhill

  • Mar 09, 2021 - USD $ 50.00
  • "Sending all my love and support to you both Katherine <3" - Chloé

  • Mar 09, 2021 - USD $ 129.27
  • "Hugs" - VDB

  • Mar 09, 2021 - USD $ 150.00
  • "Stay strong beautiful Leila! God is our miracle worker and victory. " - M.V.

  • Mar 09, 2021 - R 2 000.00
  • "Pensamientos muy fuertes para ustedes y un monton de besos ! Cuidense !" - Julie y Nicolas

  • Mar 09, 2021 - R 1 000.00
  • "Lots of Love " - Solange

  • Mar 09, 2021 - R 1 000.00
  • "Wishing you all the love and strength beautiful girl! " - Gina

  • Mar 09, 2021 - R 1 000.00
  • "xxx" - Cat

  • Mar 09, 2021 - USD $ 129.27
  • "With best wishes" - Anne

  • Mar 09, 2021 - R 2 000.00
  • "Wishing you all the best" - Julie

  • Mar 09, 2021 - R 500.00
  • "

    Take care of both of you

    " - Nadine sewell

  • Mar 09, 2021 - R 1 000.00
  • "

    Sister, I hope this will help. Love you all.

    " - Lele

  • Mar 09, 2021 - R 1 000.00
  • "

    Thing of you both and sending you lots of courage and light

    " - Christel Danton

  • Mar 09, 2021 - USD $ 196.11
  • "We love you girls Continue to be strong!" - Nadia et Christophe

  • Mar 09, 2021 - USD $ 10.00
  • "Get well!" - T

  • Mar 08, 2021 - USD $ 65.37
  • "Be strong! Wish you all the best ! Julie " - Julie steinier

  • Mar 08, 2021 - R 500.00
  • "Sending love always! " - C

  • Mar 08, 2021 - R 500.00
  • "." - Anonymous

  • Mar 08, 2021 - USD $ 65.37
  • "You got this Leila!!" - Anon

  • Mar 08, 2021 - R 1 000.00
  • "Love and strength " - Anonymous

  • Mar 08, 2021 - R 500.00
  • "Love and healing to you both xx" - AimeeJon

  • Mar 08, 2021 - R 250.00
  • "Sending love and strength to your beautiful girl!!!" - Baskinds

  • Mar 08, 2021 - R 1 000.00
  • "Wishing you all the love, strength and healing Leila. Love to you and your Mom and family, thinking of you x" - Melissa Lubba

  • Mar 08, 2021 - USD $ 32.69
  • "Miracles happen. Have true faith and God will hear you" - Jazmin

  • Mar 08, 2021 - USD $ 65.37
  • "We are all with you. Lots of love. I will be following and looking forward to Leila's recovery" - Carlos Francisco

  • Mar 08, 2021 - R 1 000.00
  • "Thoughts are with you" - Jim

  • Mar 08, 2021 - R 1 000.00
  • "

    To my Elgin Family, we've been through a lot... we love you and we are here for you...

    " - Rushka Lee Pedro

  • Mar 08, 2021 - R 500.00
  • "Well wishes and regards" - Anonymous

  • Mar 08, 2021 - R 500.00
  • "Brave leila pie! And brave mom, love u both to the ends of the earth! U guys have got this xxx" - Shelley Ming Sun

  • Mar 08, 2021 - USD $ 65.37
  • "Besitos y abrazos, Nany y familia " - Nany

  • Mar 07, 2021 - USD $ 65.37
  • "It doesn't stop here" - Gavin

  • Mar 07, 2021 - R 10 000.00
  • "I have not stopped praying for both of you and believe that Jesus will make a way." - Mara

  • Mar 07, 2021 - USD $ 50.00
  • "Our thoughts are with you. " - Chris and Kate McNulty

  • Mar 07, 2021 - USD $ 300.00
  • "Sending you healing prayers sweet Leila." - Coco

  • Mar 07, 2021 - R 1 000.00
  • "You’ve got this! Sending lots of love light and strength! " - Jenny Taylor

  • Mar 07, 2021 - R 500.00
  • "Get well soon Leila. Sweet daughter and mum are in our thoughts and prayers " - Anonymous

  • Mar 07, 2021 - USD $ 653.71
  • "Leila, wish you the best and lots of prayers" - Gerry Murphy

  • Mar 07, 2021 - USD $ 392.23
  • "Always thinking of you, lots of love Anissy, Sebastian and Rainer" - Anissy

  • Mar 07, 2021 - USD $ 20.00
  • "Buena suerte !" - Cristian

  • Mar 07, 2021 - R 2 000.00
  • "Leila you are in my thoughts and prayers. Sending you tons of love and light. " - Graeme van Jaarsveld

  • Mar 07, 2021 - R 500.00
  • "be strong little angel" - Lisa Evans

  • Mar 07, 2021 - USD $ 326.86
  • "Katherine, I’m so sad to read that Leila is going trough this. I know you need to put on a strong face for her but if you ever want to talk, I’m a phone call away. " - Smith Lorène

  • Mar 07, 2021 - R 5 000.00
  • "Lots of love from the Castrillon Vratsanoses" - Dimitri

  • Mar 07, 2021 - R 1 000.00
  • "Lots of love" - Jennifer Thompson

  • Mar 07, 2021 - R 500.00
  • "All the best Leila! " - Lise J

  • Mar 07, 2021 - R 500.00
  • "Sending love and light to you and your beautiful daughter." - Justine Evans

  • Mar 07, 2021 - USD $ 65.37
  • "Wishing you every prayer and you will get there Kat and Leila " - Leonardo Remedios

Donate to this charity

Statistics

Donations to date

R 607 614.90

Fundraising target

R 1 000 000.00
Donate

Leila Reyes Hoffman Medical Cause

Leila Reyes Hoffman Medical Cause Logo

My daughter Leila, was diagnosed with Ewing's Sarcoma, Stage 2a. It is localized in an 8cm tumor in her lower left tibia -  on 31 August 2020 just 3 months shy of her 10th birthday.

The medical aid canceled our cover stating their reason as “non-disclosure of a pre-existing condition”. We had been to the GP because of a pain in her shin, which we had initially assumed was the result of playing on her bike or doing somersaults. Bone cancer was not only NOT a pre-existing condition, it was inconceivable. She was only officially
diagnosed weeks later.

Leila had her first of many Covid tests on a Wednesday and was admitted to the Pediatric orthopedic ward at the Charlotte Maxeke Johannesburg Academic Hospital on Friday, with the biopsy scheduled for Monday, and was discharged on Tuesday. Due to lockdown restrictions, we were not allowed to visit nor stay with her. I could not bear to put her through that again.

Following the biopsy and her official diagnosis, she has been treated by the phenomenal team at the CMJAH pediatric oncology clinic and has completed 6 months of chemotherapy.

The next phase of her treatment involves surgically removing the tumor through either Limb Salvaging Surgery or Amputation. I have met with the Orthopedic surgeon at the CMJAH and requested a second opinion from another surgeon at the Donald Gordon. Although Leila has received wonderful care at the CMJAH, some of my reasons for choosing to go Private are:

-   To my understanding, there are limited resources at the CMJAH.

-    Enhanced infection prevention (she will be a higher risk due to chemo)

-    Microsurgery and use of bone grafts from her hip was an alternative offered privately as opposed to taking out the fibula from her healthy leg as proposed by the surgeon at CMJAH.

-    Lockdown restrictions are strictly enforced by CMJAH, She would possibly go through all this without her parents by her side…again.

I have had to watch my little child endure the havoc chemotherapy has had on her tiny body and I am desperate to spare her any additional unnecessary pain and suffering.

All of you, who have met my daughter Leila, will know that she is the kindest, sweetest, most compassionate little girl. She never complains, never whines… She has always been just the easiest, happiest child. No one deserves to go through an illness like this…especially not Leila. Yet she takes it all in her stride, comforting those around her with her most beautiful smile. 

I have R200 000 for her surgery and any further treatment she may need…But the reality is that going private may barely be enough to cover the hospital stay...I need a miracle.

As her mother, it is my duty to ensure she gets the best shot at a carefree childhood and cancer-free life.

It is my life mission to make this happen! To contribute please select the project below and then select the donate option. We need your help.