No Price Tag on Lorryn's Life
- By: Belinda Nell
- Short URL: https://www.backabuddy.co.za/loz-nell
My name is Belinda Nell and I am raising funds to support my sister, Lorryn (31) who has Cystic Fibrosis.
The money raised will go to medical aid expenses to help her receive a new drug that will increase her life expectancy. The medication costs R400 000.00+ depending on the exchange rate. These drugs have the ability to increase a person’s lung function by up to 30%+, thereby enhancing quality of life. A cure is yet to be found. This treatment is life changing. Lorryn has been oxygen dependent since November 2018. As she is no longer a lung transplant candidate, this drug is now her only chance to survive or to help her live beyond expectation.
In 2014, we lost a sibling to Cystic Fibrosis before this medication became available, so our thoughts are filled with – “what ifs.” My father was recently retrenched and since Lorryn relies on my parents for medical expenses, I have taken it upon myself to raise money to help save my sister before time runs out.
I have faith and believe miracles can happen and there is hope but it comes with a price tag and I need help because I cannot do this on my own.
Help me make a way for Loz to live a limitless life and make her dreams come true.
Update: Media exposure for Loz:
In a nutshell, here are the facts you need to know:
- Cystic Fibrosis is a “rare” genetic disease which primarily affects the lungs and pancreas and a person is born with CF - it is hereditary. The number of CF warriors diagnosed worldwide is increasing - yet awareness is still minimal and the treatment is very very costly, especially for people living in South Africa.
- There new gene therapy treatments which are available on the market today that in a way “halt” the progression of this silent disease. This improves a CF’s life expectancy. CFers are now living their forties, fifties, and older.
The funds will be used towards:
Lorryn's medical aid expenses and shortfalls.
Raising the total amount needed to allow Loz the opportunity to receive the triple therapy.
- Aug 06, 2019 - R 50.00
- "All the best and father God be with all your family " - Sihle
- Aug 06, 2019 - R 51.41
- "All of the best" - Carol B
- Jul 30, 2019 - R 514.10
- "The Afrikaans file alone was worth more than this. Wish I could be giving more." - The Brain
- Jul 20, 2019 - R 514.10
- "Blessings" - B
- Jul 02, 2019 - R 110.00
- "Love your bestest sibling" - Bells
- Jul 02, 2019 - R 205.64
- "Keep fighting. " - Rita
- Jul 01, 2019 - R 1 028.20
- "Keep Fighting" - Quintis
- Jun 28, 2019 - USD $ 14.85
- "All the best" - Anonymous
- Jun 26, 2019 - R 100.00
- "Hope your dream comes true" - Anonymous
- Jun 24, 2019 - R 60.00
- "Stay strong !" - Amy
- Jun 21, 2019 - R 514.10
- "Hoping this bit helps. All the panda love." - Panda
- Jun 21, 2019 - USD $ 34.84
- "Love from Dallas, Texas" - Anonymous
- Jun 21, 2019 - R 110.00
- "Be strong Lorryn! You go girl!!!" - Anonymous
- Jun 20, 2019 - R 514.10
- "All the best x" - Katya