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No Price Tag on Lorryn's Life

No Price Tag on Lorryn's Life

Personal message

My name is Belinda Nell and I am raising funds to support my sister, Lorryn (31) who has Cystic Fibrosis.

The money raised will go to medical aid expenses to help her receive a new drug that will increase her life expectancy. The medication costs R400 000.00+ depending on the exchange rate. These drugs have the ability to increase a person’s lung function by up to 30%+, thereby enhancing quality of life.  A cure is yet to be found. This treatment is life changing. Lorryn has been oxygen dependent since November 2018. As she is no longer a lung transplant candidate, this drug is now her only chance to survive or to help her live beyond expectation.

In 2014, we lost a sibling to Cystic Fibrosis before this medication became available, so our thoughts are filled with – “what ifs.” My father was recently retrenched and since Lorryn relies on my parents for medical expenses, I have taken it upon myself to raise money to help save my sister before time runs out.

I have faith and believe miracles can happen and there is hope but it comes with a price tag and I need help because I cannot do this on my own. 

Help me make a way for Loz to live a limitless life and make her dreams come true.

Update: Media exposure for Loz:

https://midrandreporter.co.za/220994/raise-funds-for-those-affected-by-cystic-fibrosis/

https://kemptonexpress.co.za/207123/how-many-times-can-loz-cheat-death/?fbclid=IwAR3hFjr_1gswX9uP-J90fH02vPqpSW9QGooV5xIA5c7j5s2FJ5omb9XfTYE

In a nutshell, here are the facts you need to know:

  • Cystic Fibrosis is a “rare” genetic disease which primarily affects the lungs and pancreas and a person is born with CF - it is hereditary. The number of CF warriors diagnosed worldwide is increasing - yet awareness is still minimal and the treatment is very very costly, especially for people living in South Africa.
  • There new gene therapy treatments which are available on the market today that in a way “halt” the progression of this silent disease. This improves a CF’s life expectancy. CFers are now living their forties, fifties, and older.

The funds will be used towards:
Lorryn's medical aid expenses and shortfalls.
Raising the total amount needed to allow Loz the opportunity to receive the triple therapy.

 

Donations

  • Aug 06, 2019 - R 50.00
  • "All the best and father God be with all your family " - Sihle

  • Aug 06, 2019 - R 51.41
  • "All of the best" - Carol B

  • Jul 30, 2019 - R 514.10
  • "The Afrikaans file alone was worth more than this. Wish I could be giving more." - The Brain

  • Jul 20, 2019 - R 514.10
  • "Blessings" - B

  • Jul 02, 2019 - R 110.00
  • "Love your bestest sibling" - Bells

  • Jul 02, 2019 - R 205.64
  • "Keep fighting. " - Rita

  • Jul 01, 2019 - R 1 028.20
  • "Keep Fighting" - Quintis

  • Jun 28, 2019 - USD $ 14.85
  • "All the best" - Anonymous

  • Jun 26, 2019 - R 100.00
  • "Hope your dream comes true" - Anonymous

  • Jun 24, 2019 - R 60.00
  • "Stay strong !" - Amy

  • Jun 21, 2019 - R 514.10
  • "Hoping this bit helps. All the panda love." - Panda

  • Jun 21, 2019 - USD $ 34.84
  • "Love from Dallas, Texas" - Anonymous

  • Jun 21, 2019 - R 110.00
  • "Be strong Lorryn! You go girl!!!" - Anonymous

  • Jun 20, 2019 - R 514.10
  • "All the best x" - Katya

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Statistics

Donations to date

R 7 182.04

Fundraising target

R 380 000.00

Funds raised offline

R 2 700.00
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Lorryn Nell Medical Cause

Lorryn Nell Medical Cause Logo

My name is Belinda Nell and I am raising funds to support my sister, Lorryn (31) who has Cystic Fibrosis.