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Mairah's miracle

Mairah's miracle

Personal message

Hi, I'm Irfaan and I'm from Cape Town.

Mairah is our 19-month old daughter.
 
When Mairah was just 15 months old she was diagnosed with Stage 4 High-Risk Neuroblastoma, which is a form of childhood cancer.  She also has a genetic mutation fuelling cancer, making treatment much harder.

The frontline treatment of this cancer consists of chemotherapy, surgical removal of the tumour, radiation and stem cell transplant – quite a lot for this little person – but she’s proven to be quite strong thus far. 

Fortunately, we have access to all the frontline treatment in South Africa and this is covered by our medical aid scheme.

Mairah’s form of cancer has the second stage of treatment – to avoid relapse or treat refractory disease, but this part of the treatment is not offered in South Africa yet. 

The second stage of Mairah’s treatment involves "anti-GD2" immunotherapy which is administered after the frontline treatment, or along with chemotherapy if the cancer is chemo resistant (refractory). It is immunotherapy specifically designed to target the neuroblastoma cells and will increase Mariah’s chances of survival and prevention of relapse by at least 20 percent.

Because the specific immunotherapy is not yet available in South Africa, we will have to seek treatment for Mairah overseas, where immunotherapy is part of the standard of care for treating Neuroblastoma (just as chemotherapy has always been the standard of care for treating cancer as a whole). 

However, the cost of this treatment is astronomical. The administration of the immunotherapy anti-body itself amounts to approximately R 2.5 million. We are prepared to do everything to give Mairah an equal chance of survival as compared to a child in other countries where immunotherapy is offered as the standard care.

We were informed on Monday, 5 July 2021 that Mairah's cancer progressed after an extremely intensive chemotherapy protocol.

She now also has a heartbreakingly obvious tumour on her cheek.

We have also exhausted the options in South Africa at this stage and have been advised to seek help in North Carolina, the USA where there is a centre of excellence in neuroblastoma. We will be seeking chemo-immunotherapy, which has proven to have excellent results in stubborn and progressive diseases similar to Mairah’s.

You can follow her journey on Instagram and Facebook @Mairahsmiracle

As per the campaign creator’s request, funds raised will be paid directly to the relevant institution. 

Donations

  • Oct 19, 2021 - R 200.00
  • "May you be blessed even while you are going through such a hard time. x" - Jacqui vd Westhuizen

  • Oct 03, 2021 - R 100.00
  • "May Allah grant ease and shifaa Ameen " - UmmSafiyyah

  • Sep 25, 2021 - R 250.00
  • "May the Almighty grant her complete shifa" - Nabeelah

  • Sep 22, 2021 - R 1 000.00
  • "

    May the Almighty grant Mairah shifaa and aafiyah Ameen

    " - Johnny Philippou

  • Sep 21, 2021 - R 100.00
  • "

    GOD Bless you Mairah

    " - Carlos and Evelyn Afonso

  • Sep 20, 2021 - USD $ 33.84
  • "All the best, keeping you in our prayers" - Donation

  • Sep 20, 2021 - R 200.00
  • "Praying for her full recovery" - Shaheeda Petersen

  • Sep 20, 2021 - R 200.00
  • "All the best baby girl" - Preneshini

  • Sep 20, 2021 - USD $ 10.15
  • "Praying for you Mairah" - Arya

  • Sep 20, 2021 - R 100.00
  • "GOD BLESS" - F&S

  • Sep 19, 2021 - R 200.00
  • "Praying for you" - Aisha Mia

  • Sep 19, 2021 - USD $ 3.40
  • "." - Anonymous

  • Sep 19, 2021 - R 500.00
  • "All of the best " - Megan Bam

  • Sep 11, 2021 - R 200.00
  • "Praying for you, sweet Mairah." - AmyB

  • Sep 10, 2021 - R 200.00
  • "Praying for Mairah" - For Mairah

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Statistics

Donations to date

R 3 949.90

Fundraising target

R 2 500 000.00
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Mairah Hassan Medical Cause

Mairah Hassan Medical Cause Logo

Mairah is our 19-month old daughter. When Mairah was just 15 months old she was diagnosed with Stage 4 High-Risk Neuroblastoma, which is a form of childhood cancer.  She also has a genetic mutation fuelling cancer, making treatment much harder.