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Michelle's Life With Pompe Muscle Disease

Personal message

I have been diagnoses with Pompe Muscle Disease in 2017 after being a healthy person my whole life. I was paralyzed and been in the ICU for 130 days. Where I had to learn to stand and walk again. I also had a trachea in my throat due to the fact that my diaphragm was paralyzed too. I had to learn to live with a disease that no one has heard of. This disease is getting to my body. Deteriorating every day. Making my daily tasks so much harder than they should be

If we raise enough funds I would be able to buy the necessary that is required to get along with daily battles. We take standing up or sitting or even walking for granted. I just wish not to struggle with standing up or sitting in a chair.

Firstly we will purchase a lift chair that would make it able for me to sit in a chair and not in the bed or wheelchair the whole day. The lift is needed because I struggle to stand up myself.
These chairs go for R20 000

Secondly, I will need to buy a new bed. Currently having an orthopaedic bed is now no use to me because I struggle to get out of bed. It is very low to the ground so we need a bed that can also lift to the necessary hight that is needed to get up.

Price going R25 000
The leftover funds that are raised we will purchase a new toilet raiser that is going for R2000

Statistics

Donations to date

R 0.00

Fundraising target

R 50 000.00
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Michelle Marais Pompe Muscle Disease Cause

Michelle Marais Pompe Muscle Disease Cause  Logo


I have been diagnoses with Pompe Muscle Disease in 2017 after being a healthy person my whole life. I was paralyzed and been in the ICU for 130 days. Where I had to learn to stand and walk again. I also had a trachea in my throat due to the fact that my diaphragm was paralyzed too. I had to learn to live with a disease that no one has heard of. This disease is getting to my body. Deteriorating every day. Making my daily tasks so much harder than they should be


If we raise enough funds I would be able to buy the necessary that is required to get along with daily battles.