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Help Feed Morgan

Personal message

Morgan van der Westhuizen

After months of failing to thrive, constant infections, suffering, misdiagnosis, she was diagnosed at the age of 9 months with FPIES. This a rare food allergy that has changed Morgan’s and her family’s life.

Morgan Van Der Westhuizen was born on 27 December 2017 and from the start, she battled with food. Breastfeeding wasn’t advised as it left her grey and lethargic, and all formulas had the same reaction: feeds every 3 hours and fussing for 2 hours in-between, with severe reflux.

Eventually, the only formula that worked was Neocate. Morgan was a different child: she gained weight, hardly cried and most importantly… she was happy! The downside? It’s extremely expensive.

When Morgan was introduced to solids, she began to fall ill all of the time – flu symptoms along with chronic vomiting and diarrhea.

After a really stressful emergency hospital stay, where Morgan was severely dehydrated, it was clear – Morgan had a chronic food problem. Morgan had gone undiagnosed for 9 months.

She was referred to a specialist, where after a battery of tests, it came back that Morgan has Food Protein-Induced Enterocolitis Syndrome (FPIES), which is a delayed food allergy. It’s an allergy where only the gastrointestinal organs are involved, and on eating a trigger food, vomiting and diarrhea occur, which can lead to severe dehydration and shock, requiring hospitalisation. In most cases, children with FPIES have a reaction to one or two foods only but Morgan has a more severe case where it’s easier to explain what doesn’t trigger a reaction, rather than what does.

Currently, Morgan can ONLY eat:

  • Neocate formula (which is the most important as it provides 90 percent of her nutrition)
  • Lamb
  • Avo
  • Banana
  • Essential Amino Acid Mix (Protein Supplement)
  • Fantomalt (Carbohydrate Supplement)

Currently, the Neocate formula costs almost R500 a tin, and the tin lasts at the most, 1 day ONLY. This means that the family spends around R15 000 a month on Neocate alone.

Morgan is underweight and underdeveloped for her age due to the FPIES, and she must attend occupational therapy and visit dieticians and specialist paediatric doctors, and the medical bills aren’t covered entirely by medical aid. She has also developed a primary immune condition from malnutrition, which requires its own treatment plan.

Morgan’s entire family is affected by this – when Morgan goes into hospital (which is, sadly, far too often), Mom stays with her in hospital. Morgan has an older sister, Dani, and she’s had to be far more mature for her age than what’s expected and has often had to come second to Morgan’s needs. Dad is the only breadwinner, and while he doesn’t mind, it is a huge financial strain.

Absolutely any help, be it by assisting with funding or even if you share this page, will be appreciated more than words can say.

Your donations will go directly to feeding Morgan and keeping her strong and healthy so she may outgrow FPIES and live a long healthy happy life.

Help us SAVE the life of this incredibly special child!

  • Protein: Essential Amino Acid Mix 3 tins x R3250 = R 9 750 per month.
  • Carbohydrates: Fantomalt 4 tins x R 435 = R1 740 per month
  • Fat: Liquigen 4 bottles x R290 = R 1 160 per month.
  • Neocate LCP: 23 tins x R 489.95 = R 11 268.85 per month.

Donations

  • Jun 08, 2020 - USD $ 30.00
  • "Praying for Morgan's recovery. Don't have a lot money as I'm unemployed, but hope this helps. Our daughter will be 3 in July too, and can't even imagine how hard it must be. Hang in there!" - Maureen

  • May 18, 2020 - R 200.00
  • "

    I can only imagine how hard it must be. I pray many people will help.

    " - Barbara

  • May 13, 2020 - R 200.00
  • "

    Blessings

    " - Anonymous

  • May 12, 2020 - USD $ 9.76
  • "Stay strong little one." - Ingrid

  • May 12, 2020 - USD $ 21.69
  • "You will beat this!!!" - Lou

  • May 12, 2020 - R 200.00
  • "

    Will pray for you.

    " - Elmien

  • May 12, 2020 - R 1 000.00
  • "

    God bless you little angel and place his healing hands on you.

    " - The Dias Family

  • May 12, 2020 - USD $ 10.85
  • "Every little bit helps!" - Margo

  • May 11, 2020 - R 200.00
  • "Wishing her the best " - Jean Alfonso

  • May 11, 2020 - USD $ 65.07
  • "On behalf of Layla and Lexi" - QW

  • May 11, 2020 - R 300.00
  • "All the best. One can only imagine how difficult it must be to provide what she needs. " - Debbie

  • May 10, 2020 - R 300.00
  • "Your family in in our prayers. God bless you." - Prinsloo Family

  • May 09, 2020 - R 1 000.00
  • "With love from your friends, the Weitz Family" - Weitz Family

  • May 09, 2020 - USD $ 64.67
  • "Praying for your family. What seems impossible is possible for our all-powerful God xxx" - Mariette Barnard

  • May 08, 2020 - USD $ 26.86
  • "Thinking of you xx" - Claire HM

  • Apr 26, 2020 - R 100.00
  • "I am planting this seed and trusting God to make it grow. " - Pam Reynecke

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Statistics

Donations to date

R 7 688.94

Fundraising target

R 100 000.00
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Morgan van der Westhuizen Medical Cause

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Morgan van der Westhuizen

After months of failing to thrive, constant infections, suffering, misdiagnosis, she was diagnosed at the age of 9 months with FPIES. This a rare food allergy that has changed Morgan’s and her family’s life.

Absolutely any help, be it by assisting with funding or even if you share this page, will be appreciated more than words can say.

Your donations will go directly to feeding Morgan and keeping her strong and healthy so she may outgrow FPIES and live a long healthy happy life.