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Hope for Nadiha

Hope for Nadiha

Personal message

My name is Mia van Schalkwyk (neé Vermaak), aged 37. I now live in Michigan, USA, but lived in Bloemfontein until 2018, where I became good friends with my colleague Marieta, her husband Brink and their two daughters Abiha and Nadiha.

Weeks before Nadiha was born in April 2010, scans showed an abnormal growth in her heart and we expected she would need heart surgery soon after birth. However, when she was born, doctors diagnosed her with a rare and untreatable genetic disorder - ‘tuberous sclerosis complex’ (TSC). This disorder affects every person differently but usually causes growths (non-cancerous tumors) in many parts of the body, including the brain, heart, kidneys, eyes, skin and lungs. TSC may also cause a variety of developmental problems, and seizures. (https://www.tsalliance.org/about-tsc/what-is-tsc/;https://ghr.nlm.nih.gov/condition/tuberous-sclerosis-complex). 

Nadiha had her first seizure when she was just 2 weeks old. She continued to have several seizures per day and needed chronic medication and later a strictly ketogenic diet to control her seizures. Over the years, she was diagnosed with growths on her brain, heart and kidneys, which were not treatable. 

True to the meaning of her name, hope, Nadiha has overcome so many barriers. She grew up to be a brave, kind, generous, loving and playful girl. She always finds something to be grateful for and is content – despite her health challenges. She started school in 2017 and is currently in Grade 3. 

In May 2019, Nadiha suddenly became very sick and was admitted to hospital with symptoms of high brain pressure. Scans revealed a large brain tumor which was removed on 4 June 2019. After several weeks in ICU she returned home to be taken care of by her family. She was still very frail, struggled to eat and walk and had much pain. Even though the tumor was removed, her brain pressure increased again and on 3 August 2019, she had emergency surgery to insert a brain shunt (to drain excess fluid). The shunt shifted and she needed surgery again on 5 August and 16 August. She remains in ICU.

The Visser family will be needing support on an ongoing basis, however, the immediate need is from August to December 2019.

Funds will be used exclusively for costs relating to Nadiha’s medical and living expenses. Expenses are escalating and her medical aid is not covering them all. In spite of her family’s careful financial planning over the years, they are now increasingly experiencing financial strain. Nadiha’s mother, who used to work full-time, had to negotiate a half-day position and started working from home, to allow her to take care of Nadiha full-time. 

When she is discharged from hospital, Nadiha will continue to need medical intervention, including medical and nursing care, physiotherapy, occupational therapy and counselling. Depending on her progress, she may need homeschooling instead of returning to her current school.

Nadiha has overcome many barriers in her life so far and has been an inspiration to many people – young and old. The money raised through this page will provide funds for her ongoing medical care and rehabilitation expenses, giving her the best chance to overcome this trial and continue her journey of hope.

*Funds raised will go directly to the relevent medical practitioners*

Donations

  • Sep 11, 2019 - R 1 000.00
  • "Liewe Nadiha. Dankie dat jy ons oë elke dag oop maak om die "mooi" rondom ons raak te sien. " - Familie

  • Sep 10, 2019 - R 1 000.00
  • "Julle is in ons gebede!" - Anoniem

  • Sep 09, 2019 - R 360.00
  • "Beterskap en krag van Bo aan julle toegebid. " - Anonymous

  • Sep 04, 2019 - USD $ 69.54
  • "We are praying for Nadiha’s complete restoration to good health. God bless your entire family." - Anonymous

  • Sep 03, 2019 - R 2 056.40
  • "Die genade van die Here Jesus Christus en die liefde van God en die gemeenskap van die Heilige Gees sal by julle wees." - Vriende

  • Sep 02, 2019 - R 210.00
  • "May our Lord Jesus fill you all with His loving peace and comfort. " - Anonymous

  • Sep 01, 2019 - R 200.00
  • "Sterkte... Vind julle krag in die vreugde van die Here" - Anonymous

  • Aug 29, 2019 - R 514.00
  • "Bly so sterk Nadiha. Baie liefde." - Anonymous

  • Aug 23, 2019 - R 510.00
  • "Get well soon!" - Anonymous

  • Aug 23, 2019 - R 5 141.00
  • "Hang in there" - Anon

  • Aug 22, 2019 - R 500.00
  • "God bless" - Anonymous

  • Aug 21, 2019 - R 1 028.20
  • "Ons dink aan julle Brink en Marieta!" - Wykslid Bloemfontein

  • Aug 20, 2019 - USD $ 141.84
  • "So baie liefde en seën!" - Anonymous

  • Aug 20, 2019 - R 1 028.20
  • "Mag elke dag gevul wees met hoop." - Anonymous

  • Aug 20, 2019 - R 5 010.00
  • "Hou aan baklei julle inspireer 'n hele gemeenskap" - DNR

  • Aug 20, 2019 - R 360.00
  • "Nadiha bly in ons gebede Mevrou " - Anonymous

  • Aug 20, 2019 - R 1 542.30
  • "Met liefde x" - Anonymous

  • Aug 20, 2019 - R 400.00
  • "???? Mag Bonatuurlike vrede oor julle harte heers." - D.

  • Aug 20, 2019 - R 210.00
  • "Mag jy toegevou word deur die Here se liefde en genade! " - Anonymous

  • Aug 20, 2019 - R 100.00
  • "I pray that God heals Nadiha completely. " - Anonymous

  • Aug 20, 2019 - R 507.50
  • "Word gou beter Possie!" - ??

  • Aug 19, 2019 - R 514.10
  • "Ons bid vir julle x" - Carin

  • Aug 19, 2019 - USD $ 34.37
  • "Baie liefde" - Anonymous

  • Aug 19, 2019 - R 514.10
  • "Bly so sterk Nadiha. Baie liefde." - Anonymous

  • Aug 19, 2019 - R 514.10
  • "Liefde vir julle almal" - Anonymous

  • Aug 19, 2019 - R 205.64
  • "Praying for a miracle " - Anon

  • Aug 19, 2019 - R 514.10
  • "Ons bid vir julle" - Lizan

  • Aug 19, 2019 - USD $ 343.69
  • "Pass it forward one day" - Jean

  • Aug 19, 2019 - USD $ 68.74
  • "To the bravest little girl I’ve ever met! TBH, the bravest person I’ve ever met. " - Anoni Mouse

  • Aug 19, 2019 - USD $ 34.37
  • "Good luck" - Anonymous

  • Aug 19, 2019 - USD $ 68.74
  • "May our Lord bless and touch you" - Anonymous

  • Aug 19, 2019 - R 510.00
  • "Hope you get better soon Nadiha!! xXx " - Anonymous

  • Aug 19, 2019 - R 50.75
  • "With love " - Anonymous

  • Aug 19, 2019 - USD $ 34.88
  • "Baie sterkte. Mag ons Hemelse Vader julle onderskraag" - Bure

  • Aug 19, 2019 - R 205.64
  • "Geloof, hoop en liefde is al wat ons het en moet hê " - Geloof

  • Aug 19, 2019 - R 510.00
  • "With Love, we give" - Anonymous

  • Aug 19, 2019 - R 500.00
  • ""Mag Jesus julle styf vashou en beskerm"" - Jacobsohn

  • Aug 19, 2019 - R 60.00
  • "Word gou gesond. Liefde. " - Anonymous

  • Aug 19, 2019 - R 1 010.00
  • "Ons bid vir jou Nadiha " - Anonymous

  • Aug 19, 2019 - R 510.00
  • "What a beautiful family who bless those around them. May they be blessed abundantly " - Anonymous

  • Aug 18, 2019 - R 507.50
  • "I hope this small contribution can go a long way. Sending all my love to the Visser family. " - Anon

  • Aug 18, 2019 - R 1 028.20
  • "A true inspiration. I do hope that my small contribution can maybe make a big difference" - Anon

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Statistics

Donations to date

R 41 023.47

Fundraising target

R 100 000.00
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Nadiha Visser Medical Cause

Nadiha Visser Medical Cause Logo


Mia van Schalkwyk (37) is raising funds for Nadiha Visser who is diagnosed with a rare and untreatable genetic disorder - ‘tuberous sclerosis complex’ (TSC).