Javascript is not enabled! Please turn on Javascript to use this site.
Neave Barrett's Journey To Sound

Neave Barrett's Journey To Sound

Personal message

On 23rd September our beautiful little girl, Neave Fern Barrett was born. Two days later she had her newborn hearing test. She didn't pass. We didn't think much of this at the time, but the weeks that followed were very difficult, as we went from test to test and slowly it dawned on us that Neave may have a hearing loss. Exactly a month after she was born, we received the diagnosis that she is profoundly deaf. We were devastated. Thankfully, we have since found hope through cochlear implants.

Because her hearing loss was identified so early, and intervention has happened so quickly, she has the opportunity to develop spoken language at the same rate as her hearing peers. With support from Carel du Toit Centre and cochlear implants, we have every hope that Neave will 'mainstream' and have the same opportunities as other children. You can watch a short SABC news clip of us advocating for newborn screening here as well as read more about our story from Health24 and Netwerk24. Neave's story was also featured by Discovery

Neave had her first implant on 11th January, and had her right ear 'switched on' on the 12th February. It was such a special moment. You can watch the 'switch on' moment where Neave hears for the first time here

Health24 also did an excellent follow up article about the magical moment here.

Mark Barrett (Neave's dad) and Elona Toska (Neave's aunt), as well as Tobie Vermeulen (Mark's colleague) are running half marathons to help raise funds for Neave.

The cost of the cochlear implant system is R517,020 (about £21,000) for two ears. Fortunately we have a medical aid (Discovery Health) which pays a portion of this, but the shortfall is still significant. Because Neave's first operation had to be performed urgently we have had to find funds to pay for the 1st ear immediately. Our hope is that we can raise the funds for Neave's 2nd ear in time for her operation, which is likely to be in May 2016. All funds raised here will specifically pay for Neave's implant & sound processor for her left ear. Any surplus funds raised will go to another child who is a CI candidate in need.

Donations

  • Jun 03, 2016 - R 610.00
  • "Love and blessings! Look forward to talking to Neave one of these days." - Gus & Cindy Faull

  • Apr 27, 2016 - R 257.05
  • "Good luck" - R

  • Apr 07, 2016 - R 411.28
  • "Love and best wishes" - Anon

  • Apr 03, 2016 - R 257.05
  • "An inspirational journey! All the best :)" - Lisa

  • Mar 30, 2016 - R 200.00
  • "All the best and good luck" - Paul

  • Mar 29, 2016 - R 310.00
  • "with all our love and hope" - Justine and Crick

  • Mar 24, 2016 - USD $ 34.22
  • "Good luck tomorrow!" - Fran

  • Mar 23, 2016 - R 512.50
  • "May you enjoy the sounds we take for granted" - Peter and Ann Baumann

  • Mar 22, 2016 - R 2 050.00
  • "Enjoy the run and all the best to Neave" - GT

  • Mar 22, 2016 - R 256.25
  • "Neave, you are deep in our hearts! Enjoy the sound of life! " - TV

  • Mar 22, 2016 - USD $ 70.82
  • "Many blessings to you all" - Paul

  • Mar 04, 2016 - R 7 000.00
  • "Keep smiling and inspiring, little brave trail-brazer Neave Nim." - Elona, Izzie and Dumi

  • Mar 01, 2016 - R 512.50
  • "x" - g

  • Feb 28, 2016 - R 1 025.00
  • "Strenghth for this incredible journey" - Annette

  • Feb 28, 2016 - R 1 025.00
  • "Best wishes for her future." - Friend

  • Feb 26, 2016 - R 400.00
  • "All the for you Neave" - Anonymous

  • Feb 25, 2016 - R 1 000.00
  • "Wishing you all the best on your journey " - Amanda

  • Feb 25, 2016 - USD $ 128.23
  • "Beautiful little champion xxx" - Shelley

  • Feb 24, 2016 - R 510.00
  • "Such a pleasure to donate and I know that the procedures will be successful" - Anonymous

  • Feb 22, 2016 - USD $ 68.70
  • "Lots of love!" - Timo

  • Feb 19, 2016 - USD $ 58.08
  • "Wishing you a successful phase 2 " - Luique

  • Feb 18, 2016 - R 1 025.00
  • "Wishing you a loud and lovely future xxx" - The Big Picture Company

  • Feb 18, 2016 - R 512.50
  • "Good luck special girl" - Jo Kirsten

  • Feb 18, 2016 - R 1 025.00
  • "Wishing you well special girl." - Debbie

  • Feb 15, 2016 - USD $ 66.84
  • "Good luck on the race. Thank you for sharing your story and we hope to meet little Neave soon" - Andon, Elca, Adela & Valbona

  • Feb 15, 2016 - R 510.00
  • "With love" - Anonymous

  • Feb 15, 2016 - R 210.00
  • "with wishes for you all to be blessed " - friend

  • Feb 13, 2016 - USD $ 52.75
  • "Good luck!" - The Secreto Family

  • Feb 12, 2016 - R 2 562.50
  • "May Neave hear and enjoy the music of life " - Clare & Rory

  • Feb 12, 2016 - R 1 537.50
  • "Filled with joy! Hooray for Neave xo" - J&V

  • Feb 12, 2016 - R 793.09
  • "Best of luck to Neave and her lovely family! " - Anon

  • Feb 12, 2016 - R 1 025.00
  • "Yea Neave!!" - Lauren & Andy & Josie & Bea

  • Feb 12, 2016 - R 1 173.70
  • "Good luck fund raising and best wishes to Neave, from Glen, Lucy, Gene & Niamh " - Glen Forde

  • Feb 12, 2016 - R 470.00
  • "Go well" - Anonymous

  • Feb 12, 2016 - R 2 000.00
  • "Here's to being able to follow your dreams, Neave." - Claire Mitchell Peers

  • Feb 11, 2016 - R 500.00
  • "Best of luck, thinking of you." - Anonymous

  • Feb 11, 2016 - R 307.50
  • "Love and strength to you all xxxx" - Mark and Tash

  • Feb 10, 2016 - USD $ 32.82
  • "All the best." - Anonymous

  • Feb 10, 2016 - R 450.00
  • "Good luck and lots of love for you and your family, Mark!" - Karin Tamboer

  • Feb 10, 2016 - R 500.00
  • "With so much love xx" - Penny

  • Feb 09, 2016 - R 1 000.00
  • "Neave I hope one day you may listen to your dad singing and your mom telling you how much she loves you! " - Erin, Mike and Nicholas

  • Feb 08, 2016 - R 1 025.00
  • "Lots of love. " - Donny

  • Feb 08, 2016 - R 510.00
  • "Love you guys xx" - R&B

  • Feb 07, 2016 - USD $ 131.63
  • "All the best xx" - Katie and Dan

  • Feb 06, 2016 - USD $ 263.25
  • "With lots of love." - The Hoppers

  • Feb 06, 2016 - R 1 189.64
  • "Good luck! xx" - Kevin

  • Feb 06, 2016 - R 1 189.64
  • "Good luck! xx" - Nikki

  • Feb 06, 2016 - USD $ 76.38
  • "good luck guys. thinking about you loads xxxx" - ilaria

  • Feb 05, 2016 - R 1 025.00
  • "With love" - Underhills

  • Feb 04, 2016 - R 512.50
  • "Strength! " - Michael Watermeyer

  • Feb 03, 2016 - R 512.50
  • "Here's to implant no. 2!" - Anonymous

  • Feb 03, 2016 - R 830.35
  • "Good luck!" - Clare H

  • Feb 03, 2016 - R 1 025.00
  • "Good luck Neave!" - Graham

  • Feb 03, 2016 - R 1 025.00
  • "Best of luck to little Neave" - Roger Zeino

  • Feb 03, 2016 - R 500.00
  • "Squeezes to you Mia and your family xoxxx" - Jessica Giles

  • Feb 03, 2016 - R 205.00
  • "All the best for little Neave " - Anonymous

  • Feb 03, 2016 - USD $ 76.72
  • "With lots of love and hope xxxxxxxxxx" - Robyn Self

Donate to this charity

Statistics

Donations to date

R 58 263.25

Fundraising target

R 60 000.00
Donate

Neave Barrett's Journey to Sound

Neave Barrett's Journey to Sound Logo

Neave's Journey To Sound