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NiQi During's Battle with Cystic Fibrosis

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At just 6 months old, NiQi During (27) from Hilton, Pietermaritzburg, was diagnosed with a terminal genetic illness called Cystic Fibrosis and abandoned by her mother and grandparents who could not afford to take care of her. 

NiQi never heard from her biological family again, but was blessed to be welcomed into a loving foster family.

When the only Cystic Fibrosis specialist left Pietermaritzburg, the family had no option but to relocate to Pretoria as NiQi's health started to deteriorate.

At just 21 years old, NiQi 's lung function reached 17% and doctors warned that she might only have 2 years left to live. NiQi signed onto a medical aid and had to wait an entire year before registering on the Organ Transplant Registry for new lungs, due to having a “pre-existing condition”.

NiQi managed to improve her lung function to 30% as she waited for her new lungs. Hoping for the best, but expecting the worst, the family had moved back to Pietermaritzburg, where NiQi has initially had chosen to live out her last days.

In February 2017, it had been two and a half years since NiQi joined approximately 4300 South Africans on the donor waiting list when she finally got the call that a match had been found. 

After an intense 6 hour procedure and a total of 6 weeks in hospital NiQi was finally able to enjoy a sense of freedom with a healthy set of lungs, but her joy was short lived. Four days after the procedure NiQI suffered a Pulmonary Embolism and developed Tachycardia Erythmia, a bacteria that damaged her heart.

Finally, after fighting the infection and embolism, NiQi enjoyed 10 carefree months and embraced normality.

In January 2018, NiQi began feeling tired and was constantly out of breath and she had a feeling something was wrong. 

I was sent for an Open Lung biopsy that caused so many complications, I had pneumothorax after pneumothorax, and landed up staying on hospital for 36 days, 21 of those days were spent in ICU. The biopsy results eventually came back and it was confirmed that I was in chronic rejection - my new lungs were no longer compatible with me” – says NiQi

Doctors at Pretoria East Hospital have now decided that photopherisis treatment is the best way forward. The procedure, that separates white and red blood cells and treats them with a photoactive drug will slow down the rejection.

We are hoping to raise R20 000 towards NiQi’s medical fees, estimated at R100 000 next year. Please support NiQi's ongoing treatment.

NiQi will need approximately 24 photopherisis sessions, with each co-payment estimated to cost around R800.

Battling a severe medical condition has interrupted what should be NiQi’s most carefree years. We hope the public will support our BackaBuddy campaign, to empower NiQi as she continues her fight against Cystic Fibrosis” – says Theresa Pienaar, founder of Porky’s People.

Support NiQi by donating here

*All funds generated by this campaign and our Cupcake Drive will be directly managed by BackaBuddy NPC and paid directly to NiQi’s medical practitioners.

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Follow NiQi’s journey on Facebook here or via our page here.

Visit our Website for more Information: www.porkyspeople.com - It Takes a Village

Donations

  • Dec 04, 2018 - R 9 000.00
  • "Xxx" - Anonymous

  • Nov 29, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Nov 21, 2018 - USD $ 37.30
  • "Wishing for a miracle" - Jennie Harborth

  • Nov 20, 2018 - R 250.00
  • "Wishing you all the best" - Dawn

  • Nov 03, 2018 - USD $ 36.77
  • "Lots of love" - Celia

  • Oct 29, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Oct 20, 2018 - USD $ 27.50
  • "Keep fighting! You’re an inspiration to us all xxx" - Cyan

  • Oct 12, 2018 - R 102.82
  • "Keep fighting NiQi " - Desrae

  • Oct 11, 2018 - R 205.64
  • "You are an inspiration" - JW

  • Oct 09, 2018 - R 200.00
  • "Jesus is our healer. Trust in him. Keep the faith and keep smiling. " - Dan G

  • Oct 08, 2018 - R 200.00
  • "My thoughts and prayers are with you NiQi." - Lyn Pickering

  • Oct 08, 2018 - R 2 570.50
  • "Wish i could do more, all the best to you and keep strong. " - S.D

  • Oct 07, 2018 - R 822.56
  • "Isiah 41:13 - For I am the Lord your God who takes hold of your right hand,and says to you, Do not fear; I will help you." - Louise Madgwick

  • Oct 07, 2018 - R 500.00
  • "Get better soon. " - Clayton

  • Oct 04, 2018 - R 1 028.20
  • "Wishing you all the best! " - Karen and Joppe Van Balen

  • Oct 04, 2018 - R 510.00
  • "Good luck" - J & P Tyson

  • Oct 04, 2018 - R 500.00
  • "Please thank God" - Travers

  • Oct 04, 2018 - R 810.00
  • "Holding thumbs for you NiQi" - Hilary Wilson

  • Oct 03, 2018 - R 205.64
  • "Wishing you all the best NiQi. You are such an inspiration to everyone who has read your story. Keeping you in my prayers." - Anonymous

  • Oct 02, 2018 - USD $ 7.40
  • "God bless and keep you" - Anonymous

  • Oct 02, 2018 - USD $ 26.16
  • "Hope all goes well!! X" - Anon.

  • Oct 01, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Sep 25, 2018 - R 2 490.00
  • "Cupcake Drive at The Wykeham Collegiate " - @porkyspeople

  • Sep 21, 2018 - R 373.83
  • "Happy Birtbday! I know it’s not much but hopefully it can help x " - Nichola

  • Sep 19, 2018 - R 514.10
  • "Wishing you all the very best" - Anonymous

  • Sep 10, 2018 - R 1 170.00
  • "Cupcake Drive at The Wykeham Collegiate " - @porkyspeople

  • Aug 29, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Aug 26, 2018 - R 250.00
  • "Cupcake Drive at Shunters Pub" - @porkyspeople

  • Aug 11, 2018 - R 100.00
  • "Spar Ladies Race Donations" - @porkyspeople

  • Aug 11, 2018 - R 380.00
  • "Cupcake Drive at Shunters Pub" - @porkyspeople

  • Jul 30, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Jul 02, 2018 - R 110.00
  • "Brenda Ferguson" - Brenda Ferguson

  • Jun 29, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Jun 05, 2018 - R 50.00
  • "raw deal but you're doing remarkably well, brave young lady" - Mike

  • Nov 25, 2017 - R 100.00
  • "Best of Luck NiQi" - @porkyspeople

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Statistics

Donations to date

R 24 668.82

Fundraising target

R 30 000.00
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Porky's People

Porky's People Logo

Porky’s People, founded in 2018, is a soon to be registered non-profit organisation, operating in South Africa.

With this platform we aim to build a community of compassionate individuals, those  who can offer not only financial assistance to those in need but inspire random acts of kindness throughout the planet.

*All funds raised by our projects are managed directly by BackaBuddy NPC.


Visit our Website: 

www.porkyspeople.com

 

Follow us on Facebook:

@porkyspeople