
Prader-Willi Syndrome Support Group SA Fundraising page
- By: Karin Clarke
- Short URL: https://www.backabuddy.co.za/prader-willi-syndrome
- Date Created: 14 May 2021
Personal message
We are a Support Group run by parents for people with Prader-Willi Syndrome.
Our goals are:
1) To raise awareness of PWS and increase understanding of the challenges they face, such as always wanting to eat. If people know this about the person with PWS they will know not to feed them and to keep food out of their sight.
2) Offer support and educate parents on how best to care for people with PWS by providing them with guidance in the form of articles, talks, videos and advice. The website and Facebook page are also sources of information that is updated
3) To improve medical treatment for people with PWS by aiming to get the approval of GHT for PWS in South Africa as it has been approved all over the world. We also aim to increase knowledge of PWS in the medical profession.
4) To provide parents with a chat group where they can communicate and share with other parents who have the same experiences and feel less alone in the world.
Funds will be used for the following:
- Awareness initiatives
- Maintaining our website and online platforms and associated costs
- For Printing Costs for medical Institutions e.g. Genetic clinics.
- Other admin expenses
- Affiliation to the International Prader-Willi Syndrome Organisation
- Support Group training and networking initiatives
To follow us and learn more go to:
http://www.praderwilli.org.za/
https://www.facebook.com/pwsasa/
https://www.instagram.com/p/COpOeBIh4Vw/?igshid=1byoy2v5cumbz
Donations
- Jun 27, 2022 - USD $ 37.03
- "Good luck with the fund raising! " - Arlene
- May 31, 2022 - USD $ 69.75 Fees covered
- "All the best " - Lance
- May 29, 2022 - USD $ 64.13
- "." - Conrad Mulhearn
- May 27, 2022 - USD $ 21.61 Fees covered
- "Go orange for Elri and the many people with PWS." - JW
- May 27, 2022 - R 1 000.00
- "All the best...." - Hendre
- May 27, 2022 - USD $ 137.29 Fees covered
- "To Elri" - Anonymous
- May 26, 2022 - R 800.00
- "Contribution to researching" - D Butler
- May 26, 2022 - USD $ 34.34 Fees covered
- "Anoniem " - Terence
- May 26, 2022 - USD $ 34.34 Fees covered
- "All the best" - .
- May 26, 2022 - USD $ 34.34 Fees covered
- "Kia Kaha " - Daz
- May 26, 2022 - USD $ 68.69 Fees covered
- "Wish all the best" - Brett
- May 26, 2022 - USD $ 68.69 Fees covered
- "For Elri" - Joana shelby
- May 26, 2022 - USD $ 34.34 Fees covered
- "For Elri" - .
- May 24, 2022 - USD $ 342.16 Fees covered
- "Happy to help" - Anonymous
- May 31, 2021 - R 100.00 Fees covered
- "We Love You Uncle Jody" - Uncle Sadiq
- May 28, 2021 - R 100.00 Fees covered
- "I love you my Jody!" - Jorga
- May 28, 2021 - R 100.00 Fees covered
- "We support you all the way, love you. " - Paul
- May 24, 2021 - R 100.00 Fees covered
- "Please help me by raising funds for Awareness for my brother Jody and many others with PWS" - Kaycee
- May 24, 2021 - R 100.00 Fees covered
- "Thank you for your support in helping me and many others with PWS" - Jody
- May 21, 2021 - R 100.00 Fees covered
- "Please join me to help Our loved one’s with PWS" - Rika
- May 21, 2021 - R 50.00 Fees covered
- "Great idea - thanks for setting up this page" - David
Statistics
Prader Willi Syndrome Support Group Cause

We are a Support Group run by parents for people with Prader-Willi Syndrome. Prader-Willi Syndrome (PWS) is a genetic condition caused as a result of a small piece of missing information from the paternal chromosome 15 which affects the hypothalamus in the brain. This causes the person with PWS to have an obsession with food and an insatiable drive to eat. They are also challenged by having low muscle tone and developmental delays, learning difficulties, behavioural and social challenges, emotional instability and lack of maturity.