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Specialised surgery for our superhero

Specialised surgery for our superhero

Funds Raised:
R 370 223
Fundraising Target:
R 500 000

Personal message

Everyone who knows Riley Marot, knows him as a feisty, energetic little boy that is full of spirit and bravery. On the outside, he looks like any other happy little boy, but on the inside his body is constantly fighting for air.

Riley was born with severe tracheobronchomalacia, a congenital condition that negatively impacts his airway and makes it difficult for him to breathe. Over the past five years, Riley has spent more than his fair share of time in hospital, has often needed to be on oxygen, and has not been able to attend school for risk of infection.

Two years ago, Riley was put onto nocturnal CPAP to keep his airways open at night. Last year, he also started with Polygam infusions (9-hour drips to strengthen his immune system) after his airway collapsed, and he started choking.

We have been blessed to have found amazing doctors and are incredibly grateful to our Lord who has held and protected Riley until now, and healed him in many other ways, but we also know that it is now time to find a medical solution for our boy.

Unfortunately, there is no surgery that exists in South Africa for tracheobronchomalacia, and anything similar has had a very low success rate. In exploring international pediatric hospitals, we were referred to the Great Ormond Street Hospital (GOSH) in London. GOSH has a specialised unit specifically for airway complications in children and has the only surgeon that performs specialised tracheal surgery in the region. GOSH has a team of doctors that can offer our boy a chance at normal airway function, and a happier life.

We have been in conversations with specialists at GOSH since December last year and are going across to the UK in November for Riley's surgery. 

The cost of this surgery is in the region of R3.5 million. It is a complicated procedure that involves a team of doctors and may require three phases. We will only know the full extent of the procedure once Riley has had the diagnostic tests (the day before surgery), and will only know the final cost after he has had the operation. However, the full cost of the surgery has to be paid upfront. 

Discovery Medical Scheme has agreed to fund 50% of the cost of the surgery, which we are very grateful for. However, there is still a shortfall of about R1.75 million for the surgery, not to mention other expenses such as consultations, flights and accommodation in the UK.

When talking to friends and family about Riley’s surgery, many have asked if we would be setting up a BackaBuddy page to help generate funds. This has been something that we have grappled with, as we live a blessed and privileged life in South Africa.

Unfortunately, the reality is that the costs of this surgery are severe, and we are likely to be at a shortfall even after we have done all that we can to try and fund the surgery ourselves.

We are committed to taking out loans to enable us to pay off the costs of the surgery but have also been encouraged by friends and family who have offered to help. Should anyone like to assist us in covering the upfront costs or pay off the expenses of the surgery, we would humbly accept this with huge appreciation.

There are many aspects to this journey that we have walked with our Riley-Roo, some of which have been incredibly hard and painful, but some of which have been beautiful and full of joy. Seeing the way that people have sought to pray for, bring meals, and contribute financially to Riley’s healthcare and looking after our family is something that we will be forever grateful for.

We don’t take any of it for granted and thank everyone from the bottom of our hearts for the support, love and care that we have received over the years.

If you would like to help Riley-Roo ahead of his surgery, you can do this in two ways:

1.     Please pray for us as a family, for Riley’s protection and long-term health

2.     If you feel led, you can financially contribute via the BackaBuddy link

 

Thank you,

Xav and Tash 

 

Donations

  • Nov 21, 2023 - USD $ 58.93 Fees covered
  • "" - Lynne Hannay

  • Nov 21, 2023 - USD $ 108.05 Fees covered
  • "" - Anonymous

  • Nov 18, 2023 - USD $ 43.22 Fees covered
  • "" - Sarah and Anthony

  • Nov 14, 2023 - R 500.00 Fees covered
  • "Get well soon" - Jane

  • Nov 14, 2023 - R 500.00
  • "" - Anonymous

  • Nov 13, 2023 - R 5 000.00
  • "Sending lots of love and prayers for our special Riley xx" - La & Sach

  • Nov 12, 2023 - R 2 000.00 Fees covered
  • "Xav and Tash Many thoughts and prayers for you all. Let us know if you need anything while here in the UK x" - Stewart and Maretha Hall

  • Nov 11, 2023 - USD $ 115.36 Fees covered
  • "Thinking of you. Be strong big guy" - Khali

  • Nov 11, 2023 - USD $ 216.10 Fees covered
  • "God speed on your journey ! Praying for an excellent outcome." - Bill and Alicia

  • Nov 11, 2023 - USD $ 115.36 Fees covered
  • "Praying that everything goes well this coming week!!! Sending you guys lots and lots of love from Canada and Europe" - Élise & Seb

  • Nov 11, 2023 - R 500.00 Fees covered
  • "Love JackyB and family. Can't wait to see you back at school soon." - Beattie family

  • Nov 11, 2023 - R 500.00 Fees covered
  • "Good Luck Big Boy... Lienca & Zian can't wait to see you back at school, healthy and running around..." - Carrihill Family

  • Nov 03, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Nov 03, 2023 - USD $ 37.82 Fees covered
  • "Wishing Riley and the family a successful surgery and many happy days ahead." - Friend of Maria

  • Nov 02, 2023 - USD $ 29.14 Fees covered
  • "" - Joe & Jean

  • Oct 23, 2023 - USD $ 54.03 Fees covered
  • "Hoping that Riley's surgery is successful." - Anonymous

  • Oct 23, 2023 - R 1 000.00 Fees covered
  • "" - Anonymous

  • Oct 20, 2023 - USD $ 54.03 Fees covered
  • "Prayers for a successful surgery and full recovery." - CH

  • Oct 20, 2023 - USD $ 54.03 Fees covered
  • "" - Newell family

  • Oct 20, 2023 - USD $ 108.05 Fees covered
  • "We will be praying for a successful surgery for Riley, speedy recovery and joyful times in life after the surgery." - Beth

  • Oct 19, 2023 - R 1 000.00 Fees covered
  • "Good luck ♥️ sending all my love and support!" - C.Sarris

  • Oct 19, 2023 - USD $ 64.83 Fees covered
  • "You are all in our thoughts and prayers. Lots of love to you all! Beryl, Bryce, Nicole, Patrick, Rachel and Luc xxxx" - Beryl and Family

  • Oct 17, 2023 - USD $ 32.42 Fees covered
  • "" - Mike Harrison

  • Oct 17, 2023 - USD $ 216.10 Fees covered
  • "Hope this helps you reach your goal , we are keeping you guys in our thoughts , reach out if we can help in other ways." - Bill and Alicia

  • Oct 17, 2023 - R 1 200.00 Fees covered
  • "Lots of love. Jenna x" - Anonymous

  • Oct 16, 2023 - R 200.00 Fees covered
  • "Praying the God will place His hand on little Riley and create a path to his healing." - Anonymous

  • Oct 16, 2023 - R 2 000.00 Fees covered
  • "Go for it Riley, may you receive Gods richest blessings always" - Anonymous

  • Oct 15, 2023 - R 2 000.00 Fees covered
  • "Riley-Roo, Jesus has you in His Hands and He loves you more than life itself. You are a BIG champion. Love you loads my boy." - Anonymous

  • Oct 15, 2023 - R 5 000.00 Fees covered
  • "Wishing you strength in this time and and healing for Riley." - Anonymous

  • Oct 15, 2023 - USD $ 284.23 Fees covered
  • "Our prayers and thoughts are with you all. We hope the operation can make a big difference for the awesome Riley. Lots of love Michele and Dave xx" - Dave and Michele

  • Oct 15, 2023 - R 500.00 Fees covered
  • "Every child deserves an opportunity to live" - Anonymous

  • Oct 15, 2023 - R 2 000.00 Fees covered
  • "Joshua 1:9. Know that our God goes before you and is the beginning and the end." - Laurienne

  • Oct 13, 2023 - R 1 000.00 Fees covered
  • "Love from UK." - Anonymous

  • Oct 13, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Oct 13, 2023 - USD $ 26.53
  • "I've been following your little chaps journey from afar via your FB posts. I just want you to know you're an incredible mom and I'll be praying for him." - Bryony Johnson

  • Oct 12, 2023 - USD $ 57.34 Fees covered
  • "" - Anonymous

  • Oct 12, 2023 - R 1 000.00 Fees covered
  • "Best of luck" - Anonymous

  • Oct 12, 2023 - USD $ 28.67 Fees covered
  • "" - Bart Mead

  • Oct 12, 2023 - R 500.00 Fees covered
  • "Sending love to all of you" - Anonymous

  • Oct 10, 2023 - USD $ 28.08 Fees covered
  • "Tash, I have sent your mom a message. Please reach out if you need help in the UK." - Anonymous

  • Oct 10, 2023 - R 1 000.00 Fees covered
  • "Praying for Riley's full recovery and keeping the hole Marot / Fenwick Family in my prayers xxx" - Tarryn Smith-Rainsford

  • Oct 10, 2023 - USD $ 28.08 Fees covered
  • "All the best Tash! You and your family will always be in my prayers. Here’s to Riley getting the surgery 💛" - Syreeta

  • Oct 10, 2023 - R 300.00 Fees covered
  • "I’ve watched this incredible Mom with complete devotion to Riley, and her family. God bless this beautiful family" - Nicola

  • Oct 10, 2023 - USD $ 100.00
  • "" - Thomas Trautmann, Charlotte, NC

  • Oct 09, 2023 - USD $ 54.03 Fees covered
  • "Prayers for the whole family. We know how hard it can be." - Ken & Mary Beth

  • Oct 09, 2023 - USD $ 111.61 Fees covered
  • "Hi Tash, from our family to yours, we wish you all the strength needed! Riley is a champ and we are thinking of him and you ❤️" - Maja von Schmeling

  • Oct 09, 2023 - R 200.00
  • "Sending love and prayers" - Anonymous

  • Oct 09, 2023 - R 1 000.00 Fees covered
  • "Sending love 🫶🏼" - Carla Jean

  • Oct 09, 2023 - R 100 000.00 Fees covered
  • "God bless Riley and the whole family. We pray for Jesus’ hand over him, and for complete healing." - Anonymous

  • Oct 09, 2023 - USD $ 32.42 Fees covered
  • "Our family send your family love and best wishes. We hope and pray for strength for you all moving forward to the operation." - Lucy

  • Oct 09, 2023 - USD $ 27.90 Fees covered
  • "Keep fighting you little champion! Sending positive wishes to you all as you embark on this journey of recovery! Xxx" - Leigh-Anne Huber

  • Oct 09, 2023 - R 1 000.00 Fees covered
  • "You are all in our thoughts and prayers. Take care and all the best. You are in Gods hands and there is always hope." - Bryce and Family

  • Oct 09, 2023 - R 500.00 Fees covered
  • "" - Chantal and Rob Holder

  • Oct 09, 2023 - R 1 000.00 Fees covered
  • "With our best wishes..." - Colin & Marné

  • Oct 09, 2023 - USD $ 54.03 Fees covered
  • "Wishing you all so much love and strength. God bless each and everyone of you! xxx" - Gale

  • Oct 09, 2023 - USD $ 1 080.50 Fees covered
  • "Marot family, may the Lord bless Riley and all the hands involved in his surgery. Love you guys." - Cari Drysdale

  • Oct 09, 2023 - USD $ 43.22 Fees covered
  • "" - Anonymous

  • Oct 08, 2023 - R 1 000.00 Fees covered
  • "Thinking of you all and trusting that Riley’s surgery will go well. Lots of love xx" - Janie and Nigel

  • Oct 08, 2023 - USD $ 108.05 Fees covered
  • "" - Anonymous

  • Oct 08, 2023 - USD $ 54.03 Fees covered
  • "" - Liz & John

  • Oct 08, 2023 - USD $ 54.03 Fees covered
  • "" - Liz & John

  • Oct 07, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Oct 07, 2023 - USD $ 11.18 Fees covered
  • "Good luck" - Anonymous

  • Oct 07, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Oct 06, 2023 - USD $ 108.05 Fees covered
  • "" - The Danons

  • Oct 06, 2023 - USD $ 54.03 Fees covered
  • "You'll get through this!" - Anonymous

  • Oct 05, 2023 - USD $ 558.67 Fees covered
  • "Keep fighting Riley. Our prayers and positive vibes are with you!!" - Anonymous

  • Oct 05, 2023 - USD $ 216.10 Fees covered
  • "" - Anonymous

  • Oct 05, 2023 - USD $ 540.25 Fees covered
  • "Best wishes and prayers for a speedy recovery. We are rooting for you! Cheers Pam and Rick Siliakus" - Get better soon!

  • Oct 05, 2023 - USD $ 540.25 Fees covered
  • "" - Anonymous

  • Oct 05, 2023 - USD $ 27.01 Fees covered
  • "Good Luck from KS(uk)" - Anonymous

  • Oct 05, 2023 - USD $ 27.93 Fees covered
  • "" - Anonymous

  • Oct 05, 2023 - USD $ 216.10 Fees covered
  • "" - Mary Smith

  • Oct 05, 2023 - USD $ 108.05 Fees covered
  • "" - Ot & Jill Quast

  • Oct 05, 2023 - USD $ 216.10 Fees covered
  • "" - Andre and Claudia Schipper

  • Oct 04, 2023 - USD $ 11.19 Fees covered
  • "" - Chris Little

  • Oct 04, 2023 - USD $ 216.10 Fees covered
  • "" - Lisa Ballard

  • Oct 04, 2023 - USD $ 21.61 Fees covered
  • "Best wishes." - Tom M.

  • Oct 04, 2023 - USD $ 22.69 Fees covered
  • "Best of luck" - Steve Parker

  • Oct 04, 2023 - USD $ 2.80 Fees covered
  • "" - Anonymous

  • Oct 04, 2023 - USD $ 216.10 Fees covered
  • "We’re behind you little guy!" - Jamie

  • Oct 04, 2023 - USD $ 108.05 Fees covered
  • "" - Steve & Lisa Rummel

  • Oct 04, 2023 - USD $ 32.42 Fees covered
  • "Wishing him the best ❤️❤️" - Jonny Fenwick

  • Oct 04, 2023 - USD $ 108.05 Fees covered
  • "Dear Riley, you are such a brave little boy the way you are dealing with your illness and we pray for your recovery. We don’t know you but we love you and you will always be in our thoughts. God bless you xx" - Keith &Kathleen

  • Oct 04, 2023 - USD $ 61.54 Fees covered
  • "A friend of Barry's. Sending you all best wishes and hope for Riley." - Anonymous

  • Oct 04, 2023 - USD $ 54.03 Fees covered
  • "" - Dave and Jen Chromy

  • Oct 04, 2023 - USD $ 21.61 Fees covered
  • "" - Anonymous

  • Oct 04, 2023 - USD $ 44.76 Fees covered
  • "I wish the very best for the little fellow. Good luck!" - Steven Ramsay

  • Oct 04, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Oct 03, 2023 - USD $ 216.10 Fees covered
  • "" - The Liberackis

  • Oct 03, 2023 - USD $ 250.00
  • "" - Anonymous

  • Oct 03, 2023 - USD $ 54.03 Fees covered
  • "" - Michael Gilligan

  • Oct 03, 2023 - USD $ 216.10 Fees covered
  • "We are keeping Riley in our prayers!" - Ray Kolarsey

  • Oct 03, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Oct 03, 2023 - USD $ 108.05 Fees covered
  • "Praying ..." - Anonymous

  • Oct 03, 2023 - USD $ 108.05 Fees covered
  • "Good luck" - Thomas Hunley

  • Oct 03, 2023 - USD $ 216.10 Fees covered
  • "Best wishes for a full recovery." - Anonymous

  • Oct 03, 2023 - USD $ 54.03 Fees covered
  • "Sending good wishes to your little guy" - Anonymous

  • Oct 03, 2023 - USD $ 216.10 Fees covered
  • "Get well 🙏" - Anonymous

  • Oct 03, 2023 - USD $ 200.00
  • "" - Anonymous

  • Oct 03, 2023 - USD $ 216.10 Fees covered
  • "Wishing the best!!" - SMT

  • Oct 03, 2023 - USD $ 28.11 Fees covered
  • "Love and prayers" - Anonymous

  • Oct 03, 2023 - USD $ 108.05 Fees covered
  • "" - Anonymous

  • Oct 03, 2023 - R 500.00 Fees covered
  • "You are in my prayers" - Anonymous

  • Oct 02, 2023 - USD $ 54.03 Fees covered
  • "All the best little fellow." - Michelle&Simon Ormerod

  • Oct 02, 2023 - USD $ 54.03 Fees covered
  • "Wishing a healthy recovery to your tiny baby!" - Debbie Tankle

  • Oct 02, 2023 - USD $ 54.03 Fees covered
  • "Our best wishes to your family." - Lee & Steve Lustig

  • Oct 02, 2023 - USD $ 108.05 Fees covered
  • "All the best wished for surgery and recovery!" - Anonymous

  • Oct 02, 2023 - USD $ 57.20 Fees covered
  • "All my prayers and well wishes!! 🙏🙏🙏" - SUSAN VERCAUTEREN

  • Oct 02, 2023 - USD $ 270.13 Fees covered
  • "We pray for a successful procedure and speedy recovery for Riley!" - Kenny & Casey Hall

  • Oct 02, 2023 - USD $ 54.03 Fees covered
  • "" - Kim

  • Oct 02, 2023 - R 1 000.00 Fees covered
  • "Wishing Riley good luck with the op!" - Angela Allan

  • Oct 02, 2023 - R 2 000.00 Fees covered
  • "Our thoughts and prayers are with you" - Pam

  • Oct 02, 2023 - USD $ 114.40 Fees covered
  • "We sincerely hope that this gesture can help the little soldier back to health." - Jane and David

  • Oct 02, 2023 - USD $ 54.03 Fees covered
  • "Thinking of all of you!" - Sarah fenwick

  • Oct 01, 2023 - USD $ 54.03 Fees covered
  • "" - James Fenwick

  • Oct 01, 2023 - USD $ 28.55 Fees covered
  • "❤️" - Anonymous

  • Oct 01, 2023 - USD $ 28.55 Fees covered
  • "" - Cathy Capelin

  • Oct 01, 2023 - R 500.00 Fees covered
  • "Praying for your little boy! ❤️" - Lauren & Andrew Hart

  • Oct 01, 2023 - USD $ 237.80
  • "Wishing you all the luck in the world that Riley recovers quickly and can start living without all the suffering xx" - Eva

  • Sep 30, 2023 - USD $ 57.10 Fees covered
  • "Tash and xav, we truly hope you can reach your goal for your brave little fighter Riley! Come on Riley son! Keep fighting like the Superhero you are! Sending losts of love to you all xxxx" - Emma and Stuart

  • Sep 30, 2023 - USD $ 54.03 Fees covered
  • "" - Anonymous

  • Sep 30, 2023 - USD $ 10.57
  • "Thinking of you all and your little boy Riley, hope he gets the surgery he needs a gets better soon Xxx" - Kennedy Amy

  • Sep 30, 2023 - USD $ 22.84 Fees covered
  • "Wishing you all the best of luck. Thinking of you 💗" - John & Nicola

  • Sep 30, 2023 - R 2 000.00 Fees covered
  • "Keeping little R in our prayers 🙏🏼" - Ryan & Rene Delahaye

  • Sep 30, 2023 - R 200.00 Fees covered
  • "Good luck little Riley ❤️" - Anonymous

  • Sep 30, 2023 - USD $ 250.00
  • "Thinking of you and praying this operation will give you the full life you deserve! Lots of love Marot fam x" - Lani, Ryan and Larkin

  • Sep 30, 2023 - USD $ 1 427.49 Fees covered
  • "" - Anonymous

  • Sep 30, 2023 - USD $ 131.33 Fees covered
  • "Sending you love and strength! You're an absolute champion Riley!" - Ashleigh

  • Sep 30, 2023 - USD $ 10.81 Fees covered
  • "Good luck x" - Nigel

  • Sep 29, 2023 - USD $ 10.53
  • "" - Pauline Murray

  • Sep 29, 2023 - USD $ 21.61 Fees covered
  • "" - Anonymous

  • Sep 29, 2023 - USD $ 569.08 Fees covered
  • "" - WENDY

  • Sep 29, 2023 - R 1 000.00 Fees covered
  • "Wishing Riley a successful surgery and a speedy recovery. Praying for your family 💕" - Anonymous

  • Sep 29, 2023 - R 5 000.00 Fees covered
  • "Have a speedy recovery!" - James and Dora

  • Sep 28, 2023 - USD $ 216.10 Fees covered
  • "Speedy recovery" - Bill and Alicia

  • Sep 28, 2023 - USD $ 28.15 Fees covered
  • "We hope this little bit helps you reach your target. Sending so much love guys x" - Em + Gaz

  • Sep 28, 2023 - USD $ 28.15 Fees covered
  • "" - Anonymous

  • Sep 28, 2023 - USD $ 56.29 Fees covered
  • "I wish I could give more, but for now that's all I can give! I pray for a full recovery, as if this never happened!!!! I love you guys and prya for lots of help and blessing coming your way!" - Sebastian Marot

Statistics

Fundraising target

R 500 000.00

Donations to date

R 370 222.91