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Sannie's Soldiers

Sannie's Soldiers

Personal message

I am Kasandra, but you can call me Sannie. I am an 8-year-old girl who has been diagnosed with Primary-Immuno-Deficiency: Selective IgA Deficiency & Selective Antibody Deficiency. I also have a leaking heart valve, and Chronic Lung Disease (Bronchiectasis).

I have loads of energy and an amazing zest for life, but unfortunately, I do not have an immune system to help me battle the germs and bugs, invariably leading me to infection which meant that hospital admission is always needed.

However, I have these amazing soldiers (Polygam) which I receive every 4 weeks, consistently. These soldiers help keep me stable and able to fight off the nasty viruses, especially through the winter months and change of seasons.

My story is long, and it is intricate. If you ever want to know a little more, my mommy Michelle would be happy to chat with you and answer any questions.

Treatment costs:

I really need help to pay for my treatments going forward. These treatments include:

  • Weekly Beriglobin home infusion
  • Hospital admissions
  • Vaccinations
  • Doctors visits
  • Anesthetist bills Scopes and scans

All of which I need regularly, as well as my cardiologist check-ups.

My mommy has managed to settle a large amount of pathology bills and anesthetists bills which have stacked up over the years, but there is a still a hoard more which roll in with every hopsital admission. 

My new home treatments I will be starting, will also workout rather costly, at approximately R25000 per month. Medical aid is assisting us, but there is still a portion which mom didnt account for. 

I also have my daily medicine which costs my mommy R1800 each month, and it is WORKING!! So I cannot miss out on it.

BUT...

The main reason for fundraising WAS to get me over to the US to the IDF Convention and to see PID Specialist doctors who can either help me with a cure or put me on a treatment plan which will be much better, safer and make my life easier. But, our amazing peadiatrician, rhumotologist, immunologist and genetisist has helped me find a general diagnosis and a treatment plan which has been helping me so far... The only possible cure for me is BMT, which my mommy does not want to risk with me yet. 

ALSO...

Mommy and I want to donate some of my collected funds to a charity/oranization or child patient in need, each month. I know that there are children worse off with me and I WANT TO HELP THEM TO! Please help me give back to my community, as they ave given so much to me. 

However, in the immediate term, we will settle all outstanding doctors bills.

These donations will allow for past accounts to be settled, and allow Sannie to get the best treatments going forward. The treatment gives her a good grounding and fighting barrier so that she does not need to miss school.

She missed a large part of her formative years at school, and this has had terrible ripple effect on her current grade 2 year. IF we can keep her fit and healthy going forward, she won't need to have any more sick days, meaning better attention and focus at school to catch up on lost time.

As we receive funds, all outstanding accounts will be settled first. Thereafter, we will be able to pay the shortfalls on hospital admissions and specialist fees.

Please follow my journey on my Facebook page: Sannies Soldiers

 

Donations

  • Feb 28, 2020 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Jan 31, 2020 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Dec 21, 2019 - R 4 000.00
  • "Sending love, light and well wishes to one amazing, strong princess warrior xxx" - Mich&Marc

  • Dec 18, 2019 - R 514.10
  • "Merry Christmas" - Myles

  • Dec 10, 2019 - R 2 056.40
  • "So pleased your doing so well" - Gail Breslan

  • Dec 03, 2019 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Oct 31, 2019 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Sep 30, 2019 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Sep 29, 2019 - USD $ 32.99
  • "My little girl was recently diagnosed with cyclic neutropenia. May God bless you Sannie and heal you. Amen" - Anonymous

  • Aug 29, 2019 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Aug 07, 2019 - R 514.10
  • "God Bless you on your journey to find answers. " - Lou-Ann and Pearton Family

  • Jul 31, 2019 - R 308.46
  • "Love you San" - Tiffany

  • Jul 31, 2019 - R 1 028.20
  • "???" - Michelle & Jacques

  • Jul 30, 2019 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Jul 30, 2019 - R 1 028.20
  • "God bless Kass" - N & J Cabanita

  • Jul 29, 2019 - R 514.10
  • "Kasandra, you are just such a joy and so full of life! I love being your teacher!" - Ms West

  • Jul 26, 2019 - R 185.08
  • "Wishing your daughter a speedy recovery Justin!" - Elan Tanur

  • Jul 22, 2019 - USD $ 2 263.90
  • "Blessings to you and strength to your soldiers ! " - Aviator

  • Jul 22, 2019 - R 2 056.40
  • "Wishing you a safe trip to the US " - Gail Breslan

  • Jul 21, 2019 - USD $ 37.74
  • "Keep going. " - Diana Perton

  • Jul 21, 2019 - R 514.10
  • "Wishing you all the best" - Edoardo

  • Jul 21, 2019 - R 205.64
  • "We love you Little Soldier. Praying everyday for you. All our love the Achterbergs" - Achterberg

  • Jul 19, 2019 - R 51.41
  • "A small contribution to getting my little Sannie better ??" - Tiffany

  • Jul 19, 2019 - R 210.00
  • "Get well! " - Anon

  • Jul 18, 2019 - R 5 141.00
  • "Sending you all lots of love.Praying 4 Sannie.God bless." - R&P Cabanita

  • Jul 17, 2019 - R 507.50
  • "All the love" - Michael

  • Jul 17, 2019 - R 1 015.00
  • "Sending you all our love and strength ??" - Helen & Clement Coetzee

  • Jul 17, 2019 - USD $ 75.85
  • "All the best little Kassandra. Met at your grandfather home last may...Bisous." - Manon Vincelette

  • Jul 16, 2019 - R 51.41
  • "For you Brave Girl" - Anonymour

  • Jul 16, 2019 - R 10 282.00
  • "Love Heals Everything" - Marcel Steinberg

  • Jul 16, 2019 - R 10 282.00
  • "Hope this helps you reach your dreams precious angel" - Jason, Taryn & Lexi

  • Jul 16, 2019 - USD $ 13.17
  • "All the best" - Anonymous

  • Jul 12, 2019 - R 514.10
  • "A little contribution for my dear friend " - Ari

  • Jul 12, 2019 - USD $ 17.98
  • "Sterkte" - Jeanette

  • Jul 11, 2019 - R 6 169.20
  • "Stay strong Sannie! You got this ????" - Paul Hele

  • Jul 11, 2019 - R 1 000.00
  • "To help you recruit more soldiers" - Anonymous

  • Jul 10, 2019 - R 132.48
  • "Now we quarter of the way closer to the target to get you better ????" - Nina

  • Jul 10, 2019 - USD $ 70.51
  • "Sending you all love and courage" - Charlotte Zeederberg

  • Jul 10, 2019 - USD $ 84.16
  • "God Bless Angel" - Shán

  • Jul 09, 2019 - USD $ 26.23
  • "Best of luck Sannie!!" - The Cardiff Makans

  • Jul 09, 2019 - R 500.00
  • "Here is something small to help achieve your goal. " - Femma

  • Jul 08, 2019 - R 1 028.20
  • "Hopes and thoughts are with you, be brave and strong!" - Justin Keats

  • Jul 08, 2019 - R 1 010.00
  • "Good luck. Get better! " - Anonymous

  • Jul 07, 2019 - R 514.10
  • "Love you Sannie lets make this happen" - Renee

  • Jul 07, 2019 - R 1 028.20
  • "Love you lots and lots like Jelly Tots Sannie. Hope this will help." - Marie van Deventer

  • Jul 06, 2019 - USD $ 354.43
  • "All the best guys!" - Tom

  • Jul 05, 2019 - R 1 015.00
  • "With God everything is possible" - Charne and Andre Strauss

  • Jul 05, 2019 - USD $ 37.61
  • "As a thank you to Lynne, who, back in the day was my sanity when juggling a job and family." - Diana Perton

  • Jul 05, 2019 - R 50.75
  • "Hope you get all the help your princess needs Mich" - Kerry Travers

  • Jul 05, 2019 - USD $ 35.75
  • "You go and get all better baby girl " - Chantal Matthews

  • Jul 05, 2019 - R 1 028.20
  • "Sending so much love to you guys and prayers for your brave little lady xx" - Blake Charne Kenzie & Danny

  • Jul 05, 2019 - R 5 075.00
  • "Be brave!" - C&R Kruger

  • Jul 05, 2019 - R 1 028.20
  • "Just a drop in the ocean Sweetheart but I hope it will all add up." - Lynne Burger

  • Jul 05, 2019 - USD $ 37.61
  • "Best of luck " - Bron

  • Jul 05, 2019 - R 203.00
  • "Best of Luck with everything " - Richard Tannous

  • Jul 04, 2019 - USD $ 13.17
  • "5186528992561360" - Jono Elias

  • Jul 04, 2019 - R 203.00
  • "sterkte hoop sy kry die hulp wat sy nodig het" - bobbie green

  • Jul 04, 2019 - R 308.46
  • "Sannie, keep shining ??" - Sam & Blake

  • Jul 04, 2019 - R 514.10
  • "God bless you guys " - Luke

  • Jul 04, 2019 - R 500.00
  • "We with you van Alphen family " - Ricardo

  • Jul 04, 2019 - R 203.00
  • "Good luck " - Carly

  • Jul 04, 2019 - R 101.50
  • "Wishing u guys all the best Mich " - Natasha Wilkinson

  • Jul 04, 2019 - USD $ 74.56
  • "Sannie you are such a Brave little warrior you are going to conquer this! May God Bless you and your Amazing family on this tough journey????" - Amelia

  • Jul 04, 2019 - R 205.64
  • "To get you started ????" - Anonymous

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Statistics

Donations to date

R 110 715.72

Fundraising target

R 500 000.00
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Kasandra van Alphen Medical Cause

Kasandra van Alphen Medical Cause Logo

Kasandra Van Alphen or Sannie is an 8-year-old girl from Johannesburg diagnosed with Primary-Immuno-Deficiency, Selective IgA Deficiency. She also has a leaking heart valve and Chronic Lung Disease.