Henri Warnich Foundation
A group of parents whose adult children have Prader-Willi Syndrome (see our fb page www.praderwilli.org.za) have got together to raise funds for a Group Home for their adult children.
No such facility exists in South Africa and, due to the nature of their Syndrome, people with PWS cannot be housed in other Group Homes, due to their uncontrolled urge to eat all the time. Therefore, all foodstuffs must be kept under lock and key at all times. Adults with PWS cannot live alone for this very same reason, which puts a big strain on families with other childen as well as the constant worry of what will happen to the PWS adult once their parents are no longerhere. They cannot be employed in the normal workforce as they have a low IQ plus the added danger of being able to get hold of food.
Sadly, it is not only the constant craving for food that is a concern - people with PWS have very low muscle tone (floppy muscles), a high pain threshold, do not get fevers, do not vomit, have a low rate of metabolism and are prone to scoliosis, diabetes and epilepsy.
Our vision is to establish a Group Home for Prader-Willi Adults under the Henri Warnich Foundation, where our PWS adults can live together in a safe environment where their special needs are taken care of by people who have been trained to deal with their special needs. We also envision starting up a Workshop so that they can be productive and occupied. A suitable house has already been identified in Beaufort West but we desperately need funding to get this project off the ground.