Ashlynns Lymphangioma Journey Part 2 Campaign
My name is Jodie Kapp and I have a beautiful twin daughter called Ashlynn Kapp. This is Ashlynn’s story;
Ashlynn Kapp was diagnosed with a congenital disease called Lymphangioma of the tongue at the age of 2. It took us many doctors visits and hospital trips to find a diagnosis.
Last year, after searching for what seemed like forever, we managed to find a doctor who was able to operate on Ashlynn and do a glossectomy and removal of soft tumour on her tongue to remove most of the tumour. This helped greatly and flare ups were very few and far between for a good few months. She has done amazingly well and the proceeds previously collected were used for her operations costs as well as post op treatment and speech therapy. Unfortunately her tongue started getting thicker again recently and flare ups started up again. After a visit to Dr. H. Kluge it was confirmed that the Lymphangioma is back and she would need a second operation.
Luckily this time it was caught early and the procedure will be much smaller and done in a day clinic by Dr. Kluge.
Unfortunately we are still not in a position to afford medical aid or cover the costs of the operation.
The costs quoted are as follows:
Dr. Kluge: R10 361,88
Cure Day Hospital R12680,00
Total: R29 103,24
Additional funds are required for follow up treatment and speech therapy.
The procedure would need to be done by December so that she is healed up to start Grade 1.
Ashlynn has an identical twin sister and would like nothing more but to look the same as her sister. We hope that eventually with adequate treatment the tumours will regress and this wish will come true for our little Ashlynn.